5 comments about Fortunate Son: The Healing of a Vietnam Vet.

1. An over-simplistic view to me is the only view anyone lacking the sensitivity to absorb this book correctly can have. Judging this person is irrelevant to the whole point of reading the book, it's not a textbook, of course there is more to the story, and of course anyone can be offended by anything. But, if your looking for a story of a young man who cheated death more then once during the Nam conflict, you will be hard press to find a better book.



2. The name of General "Chesty" Puller brings a proud smile to the lips of every Marine. He is part of the pantheon of "the few and the proud." His son, Lewis Puller, Jr., has written a memoir that tells the story of growing up in the shadow of a legendary father, becoming a Marine officer in his own right, losing his legs in an explosion while serving in Vietnam, and struggling to build a life for himself in the aftermath. This thoughtful and thought-provoking book was awarded the Pulitzer Prize.
   
   Lewis Puller, Jr. demonstrates a great deal of transparency in recounting his pilgrimage from the son of a war hero to a wounded warrior looking for his rightful place in the world. The New York Times called this book: "A haunting tribute to the names on the Vietnam Veterans' Memorial . . . An important contribution to the personal literature of war."
   
   The fact that much of Puller's personal journey took place during the same time the nation was struggling with building the Vietnam Veterans' Memorial adds a special poignancy to this memoir. Several of my friends who have served recently in Iraq and Afghanistan commended this book to me as one that had helped them in their own process of reconciling their experiences in war with their return to the United States.
   
   This is a story of great loss and of commensurate courage and determination. I think you will find it inspiring and well worth reading.



3. The book, a true account of a dissalussioned idealist - a trouble soul. A
   lead in to my sad tale of woe. My fellow Americans/Vietnam veterans, do
   not be fooled by the administration's rehtoric; read McNamara's "The Fog
   of War" and please don't forget the book "A Bright Shining Lie"! If you
   truly believe the lies of the "CHICKEN HAWKS", then I've got a bridge in
   Utopia I'll sell you. You are listening to people who never served a day in their misrable lives in war and when most of them had their chance to fight for our country, during the Vietnam war,they chose to "Cut and Run"
   (Guard duty and college deferments). There is only one way to end this
   fisco in the middle east; reinstate the DRAFT with NO LOOP-HOLES! Every-
   body goes when the 6x6 (military truck) rolls up (ages from 18 to 50),
   city/state/federal legislators, the whole nine yards. I'm speaking truth
   to power here today, people. Because when death becomes a shared sacri-
   fice, people's whole prospective changes; it's different when everybody's butt is on the line. Believe me, I know because I served three tours in
   "Nam (all voluntary) not in surrounding countryside (Thailand, Philippines, etc), but in country. I too believed in the government's
   lies (Gulf of Tonkin incident) at the time, but after a lot of years since then, I've had time to reflect and my reflections are not pleasant.
   So, if the country really wants to stop this current mistake, follow my
   advice, THE DRAFT!



4. It is difficult to not be moved by the horrific series of incidents related by Puller here. As pointed out by other reviewers, the self-portrait he renders is of a person so unappealing that the reader must conclude that what he has written with an eye first to honest description, as well as he can render it.
   That said, this book is not really worth reading as a book. The writing is stultifying flat and, for whatever reasons, the only thing Puller does here is whine, in an equally grating voice and with an equal intensity about whatever happens: the mortifying loss of his legs and much of both hands is treated with exactly the same weight as minor slights that occur in his run for office. Furthermore, a very great deal of the book is devoted to pointing out the obvious: for example, Puller insists on notifying the reader that his son learns to talk while his father (owing to a stroke) is losing the capability for speech. Should an editor have cut out this and the many similar needless explanations, the writing would have far greater impact than it does.
   Should the story of Fuller have any lessons for us, those lessons will surely be better learned by reading a (much, much shorter) article about him rather than this tedious book.



5. The recent scandal exposed by the WASHINGTON POST's coverage of conditions at Walter Reed Army Medical Center reminded me of the power of this book. One legacy of America's unfortunate invasion of Iraq will be untold numbers of young Americans--and Iraqi civilians--who will live the same sort of horrific nightmare that Lewis Puller describes so vividly in this harrowing autobiography.
   
   My retired Marine father once served under Lew Puller's legendary father, and the two of us stood in line to get our copies of "Fortunate Son" autographed by Mr. Puller, an experience I still remember vividly all these years later. Puller's prose is equally memorable, and this book should be required reading at any American high school in 2007--and for any American who plans to vote in the next election. Lewis Puller's words are more important than ever.

5 comments about The Power of Two: A Twin Triumph over Cystic Fibrosis.

1. In "The Power of Two: A Twin Triumph over Cystic Fibrosis," we meet identical twins, Isabel and Anabel Stenzel, who were born with a deadly disease: cystic fibrosis (CF). As adults, the sisters underwent the only "cure" for CF -- lung transplantation -- and are now living their lives at full-speed after childhoods dominated by chest percussions and drug therapy, numerous and lengthy hospitalizations, constant medical scrutiny, and watching their friends with CF die at young ages. "The Power of Two" is a beautifully written book that will amaze you with its brutal honesty, move you to tears, and inspire you to count your blessings. The remarkable Stenzel twins have an extraordinary lesson to teach us all: never give up, live life to the fullest, and don't take the incredible gift of breath for granted. Their story will linger in your heart long after you've closed this book.



2. What a powerful book! The twins take you through a very tough physical journey of their lives. I could not put this book down, and I would be shocked if it did not touch your heart. This book is truly inspiring!



3. I agree with what Tiffany wrote before me. I'm also an adult with CF, just hit 30. I had considered writing my own little CF memoir, but these girls did such an awesome job with their vivid depiction of their experiences, thoughts and emotions throughout their lives, they covered it all. Their journey brings you into the world of all stages of CF from everyday maintenance to near death experiences, how it's changed since the 70's, the treatments, the pain and the joy in meeting others in this special CF club. As others have said, this book covers so much more. With a German father and Japanese mother, they take you through life as biracial twins in America and Japan, their travels around the world, and the amazing support they found in family and eachother, then much much later boyfriends. Their story is brutally honest about their experiences, and they've had some tough ones. What I loved most was this honesty and ability to infuse some funny in their situations and not take themselves too seriously. It's refreshing. The narration of their mother was hilarious, even though she's their biggest supporter it seems. My only complaint is I'm jealous they went to CF camp and met Bob Flanagan, the camps were gone by the time I knew they existed.
   
   Brilliant girls, thank you!



4. Wow. The twins' story about growing up with cystic fibrosis, their biracial family, and succeeding in going to college, finding love and ultimately receiving lung transplants is profoundly moving. Their honesty about their good (and not so good) experiences, particularly with their parents and brother, and later with boyfriends, is absolutely gripping. Their persistence and hope in the face of repeated challenges, conveyed in a well-written narrative, is awesome and makes this book a great read for anyone facing challenges or wanting inspiration.



5. This book gives great courage to its readers. It is at once a tale of Ana and Isa's triumph over Cystic Fibrosis and their triumph over the struggle that is life itself. Their decision to live as victors, to engage life fully and to find value and meaning in the midst of great storms is powerful. I have found strength in this book for my own personal trials and believe that others who read it will be equally moved. This is a perfect book for those who are struggling with personal health issues, for young adults and adolescents, for people in the health industry and for educators who wish to enlighten themselves and their students on chronic illnesses, living with disabilities and issues of biculturalism.
   An amazing read. I simply could not put it down.

5 comments about The Beggar King and the Secret of Happiness: A True Story.

1. This is the best book I have read in a long time. I loved the author's technique of prefacing each chapter / theme with an ancient folk tale. This connected the wisdom of the past with the challenges of today. I found the author's style engaging and attractive (there are not many books I have trouble putting down). The teachings about life and God were profound. My only grateful regret is that I did not make notes while reading. I will now have to do that upon reading the book a second time - after I get it back from the people to which I have loaned it. My advice is don't borrow this book but buy your own copy. Then, when you read it, have a pencil nearby. There are many statements that are so life enhancing, that the reader will want to remember those passages and refer to them, when, in their turn, life grants a portion of challenge and sorrow.



2. I did not at all like this book. The author tries way, way too hard to come across as folksy yet profound, and in the end his tone is possibly the most annoying I've ever read. Which makes it even less forgivable that he constantly uses the tritest of clichés both in characterization (he compares meeting his wife to a Joan Baez pop song) and in metaphor (he really actually uses "like grit on sandpaper").
   
   There's a number of short included stories. These stories are mildly interesting on their own, and definitely provide a welcome break from having to hear the author, but lose effect when they're forced into such a corny, played-out "illustrative text" format.



3. I had picked up this book at a book fair a while back and it sat on my book self for months. One afternoon I started reading it and I was completely capitivated by the beauty, insight and inspiration contained in this bright treasure. The book speaks to your soul. It is also funny, wise and instructive. Ben Izzy gives us an opportunity to learn from his strength and challenges. When life hands you lemons you have options on what to do with them. Ben Izzy explores and discovers the ability to make lots of lemonade. This book was so moving that I wanted several special people in my life to have it and be able to read it again and again. Everyone that recieved a copy was equally knocked out. All I can say is do not pass this one up. This book will warm your soul and inspire you.



4. This book intersperses short stories from around the world with the author's struggles coping with partial muteness. Rather than being preachy or sentimental, the author entertains us by providing international tales that foretell lessons he learns in his own life. The author's advice re: happiness reminds me of Theodore Roethke's beautiful lines:
   
   "I feel my fate in what I cannot fear.
   I learn by going where I have to go."
   
   I did not provide this book with five stars, only because I felt the author's relationship with his friend Lenny was co-dependent and deserved less attention. Of course, that relationship leads the author to a large part of his self-actualization, but I would have liked to hear more about his wife--she shines in every small aside about her. If you want to be entertained and read a story about an author coping with an illness (that affects his ability to speak) in his own unique, admirable way, this is the book for you.



5. This book found me the day I was attending the wake of a good friend. I was feeling miserable of course and decided to start this book minutes before I got out of the car at the funeral home to take my mind of off my grief. I read the prologue and was hooked to this story. It has changed my outlook on life and on the death of my friend. It is great how the author takes each folktale and applies it to his life. This book is full of many life lessons and I am truly inspired to look through the curses in my life to find the blessings like Joel ben Izzy did. I have just bought this book and plan to read it to my High School World History classes this fall. I think this is a must read book for everyone. Give yourself a gift and read this book!

5 comments about Loaded: Women and Addiction.

1. I'm shocked to read the other reviews of this book. I found it repetitive and lacking in insight. Perhaps because the author never really got or stayed sober, she lacks the necessary perspective on addiction to write about it with any clarity or originality. Her blurred, romanticized, and narcissistic take on her life felt like she was writing with a glass of wine in hand. Editors and friends need to stop encouraging writers to churn out memoirs before they have digested their own experience.



2. This book is `loaded!' Though I'm not an addict, the writing craft and strength alone had me flipping madly through this book. . . Too quickly to really give justice to it's depth. Talbot shows a space that people tend to be uncomfortable with by candidly and delicately taking the reader directly into the heart of addiction. The intelligent courage within the pages of this book has me on my own journey of self-reflection targeting some of my own vulnerabilities, leaving me running lines like "I wonder, then, do we only see our own location within the geography of distance?" through my mind again and again. The book has replaced 'The Year of Magical Thinking' to become my newest literary treasure.



3. This book takes its shirt off and stands up on the bar, not in a stroke of exhibitionism, but with a sobering vulnerability to expose the naked truth of one's life. It pulls us across forbidden borders and pushes at limitation, demanding more then a socially manufactured script for a life. It takes you on journeys of insatiable yearning to the edges of continents, where one confronts the gravity of loss, and the demand for flight. It pauses within paradox, where Ph.D.s and toolbelts dance, where neon lit classrooms, smokey cowboy bars, a constellation of stars on a child's ceiling, and a married man's bed, come to signify the many worlds one can occupy in any given day. But mostly, it is a testament to the intangible grief for a former self, both wanting to still be her and simultaneously let her go. The stories evoke compassion and awe for both self and others. It is a brave book, and I respect it.



4. "Loaded" is a journey about searching for significance in every passing moment. It's the real story about love and leaving. It addresses the whole truths women experience but don't want to talk about. Your eyes will open, your heart will hurt, and your past will come back.



5. Jill Talbot has lived the life your mother always warned you about. "Loaded" is the rare cautionary tale, sometimes seductive, often harrowing, that doesn't pretend there are easy answers to our most pressing questions or a comforting moral to every story. In other words, it's one of the most honest true stories I've ever read.

5 comments about Eleven Seconds: A Story of Tragedy, Courage & Triumph.

1. I would love to review this product, however, it is now well over a month and I have yet to recieve it. I would love to know where it is and why it is taking so long. I ordered it on June 12 and my credit card was billed that day but I have not yet recieved the product. I am very disappointed.



2. Travis Roy is an inspirational man, he tells everyone about the emotional state that he was through during the whole entire situation. He created a foundation that didn't just help him but helped others with the same situation. Before reading this I didn't know the process of paralysis victims, but after I was fully aware of what paralysis victims went through emotionally and physically.
   
   It is a great story for people that don't even really like hockey because any person could get paralyzed any given day. So after reading this story it made me aware of how a single mans pain can express the words of thousands.
   
   The reason why I recommend this book is because it is the story of a man that enjoyed everyday life before being paralyzed, then after 11 seconds of hockey his life completely changed, but he fought through the pain and lived everyday to the fullest and always kept his mind looking positively. He wants to walk again and keeps thinking that he can, one thing that could possibly just keep him going everyday.
   
   So this is a must read for everyone, I strongly recommend it because it makes people explicitly aware of what paralyzed people go through. After reading the book it will make you look at people in wheelchairs differently. If you do choose to read this book, enjoy it and keep in mind that Travis Roy is much luckier than many.



3. I read this book in two days! Travis Roy is an incredible person who has lived through a tragic experience. I applaud him for setting up a foundation to help other people with spinal cord injuries. As a teacher, I would love to have him speak at my school!



4. Initially I was drawn to this book because it involved my passion, hockey. But Travis' story moved me deeply. Once I started reading this book I could not put it down. I was really interested in the affect his accident would have on his relationship with his girlfriend and I was rooting for them to stay together. I'll be honest I'm pretty bummed things didn't work out between them. But this was a great story of a very inspirational person. It truly made me want to make a contribution to his foundation which I plan on doing. I would recommend this book to anyone not just fans of hockey. Good Luck in the future Trav!



5. In Eleven Seconds, a story about a young man at the age of twenty-one living life and one event happens to change it all. Playing in his first collegiate game of hockey, Travis Roy crashed the corner after a dump in, tripped, fell, and broke his fourth vertebrae and becomes paralyzed from his neck down. This single event changes the way he and his family act towards each other. The story goes through his amazing recovery and the heart and determination he had. The author portrays Travis Roy as a hero to those that are in deep pain or trouble. He accomplishes this by showing the good and bad times in his recovery stages. After a few months at the hospital, Travis Roy wants to get back into the world and show that this freak accident will not keep him down. He returns to college and tries to become a normal student, but this is impossible because he has become a well-known person due to the accident. The grit and determination of Mr. Roy and his family members through the hard times to get to a level of peace and acceptance of what has happend is amazing. This story makes you, the reader, feel that you just need to make the best of the hand that is dealt and that if anything goes wrong you just have to deal with it and make the best of the situation. Eleven Seconds is a great book and should be read by all.

5 comments about The Day Donny Herbert Woke Up: A True Story.

1. If you are looking for an interesting/inspirational book about the day that Donny woke from a coma with the details and science behind it, this is not the book for you. The majority of the book is spent building the case for why this was a tried and true religious miracle. The book rambles on and on listing parish leaders/people and their involvement in the miracle. Finally, I just skipped to the 5 pages that detail the awakening and called it a day. Not the book I thought it would be.



2. The very idea that someone could wake up from a Rip Van Winkle like coma is amazing enough, but that the family could converse with him was astounding. I was left wanting to know a little more about Donny's eventual death and the effect of the waking on his family, but I suppose that story is still waiting to unfold.
   Donny's story should make us think about the kind of care we render to minimally conscious and comatose patients.
   I preached about this story one Father's Day.



3. While this book doesn't have a typical "happy ending" it ends with closure for the family, and is a very interesting and fairly well written book with a lot of backround information about the families and the struggles this couple experienced. Very good!



4. I could not believe they would let their dog run after their car all the way out to a suburb and I could not read anymore after he apparently got confused and lost the scent.
   
   What kind of end did HE come to ?



5. As a firefighter this book hit close to home. Also, the fact that I am a member of a fire department who unfortunately shared a similar case in which a firefighter was comatose for 13 years made this book extremely interesting. If you, or someone you know is a firefighter, buy this book. It it an easy, quick read yet it makes a person realize just how fragile life is. It also brings back memories of fires I have fought where just such an accident could have happened to me or my fellow firefighters. If you happen to be Catholic, the story is even more interesting. I highly recommend it.

1 comments about Venus on Wheels: Two Decades of Dialogue on Disability, Biography, and Being Female in America.

1. At times, the book can be an uncomfortable read. Frank describes cases of women with varying degrees of disability, and their experiences of growing up and making a living in the US. Some examples are extreme indeed. Like Diana, born with no arms and legs in 1950. You could cringe at trying to imagine yourself in her situation. Yet somehow, she managed to cope.
   
   Several others are chronicled here. Often trying to resist the expectation of wearing artificial arms and legs; by wanting to decide how they would appear in public. The book applies anthropological analysis to studying these unfortunate women.
   
   Keep in mind that the various protheses described in the book are now somewhat outdated. Better fitting, easier to use protheses have been developed in recent years. With the promise of ongoing improvements. Ironically driven in no small part by the US military casualties in Iraq.

5 comments about Rebuilt: My Journey Back to the Hearing World.

1. Michael Chorost does an excellent job of explaining the *human* side of cochlear implantation, offering a perspective that just understanding the mechanics does not. I found myself drawn into the book as he described his feeling of despair, as the little bit of hearing he did have mysteriously failed one day.
   
   Chorost also provides an insightful view of life in the Signing community, and how the implant may ultimately result in its demise. While I don't agree with those who call this 'genocide', those chapters provided an interesting and thought-provoking point of view.
   
   The book is not flawless. Sometimes the author's meanderings on life as a cyborg seem to have no clear destination in sight. But the perspectives provided more than made up for the occasional drift. As someone interested in Augmented Reality, I viewed these chapters as a sneak preview of what the next few years will bring.
   
   I also found Chorost's discussion of his sex life to be gratuitous, by which I mean that had it been omitted, I wouldn't have finished the book saying "That was a great book; I only wish I knew more about what he did in bed." But others may find these passages make the protagonist more human. I guess that's what makes horse races.
   
   All in all, definitely a worthwhile read if you're interested in getting beyond the electrodes and MIPs and understanding the human side of all this.



2. This is a very well-written book but it was very technical and dry in places. I still ordered my own copy of it since the subject matter is an important one for my family.
   
   I have a CI too and I don't consider myself to be a cyborg or part computer. I consider myself lucky and fortunate to be in a time where this is possible. I lost my hearing suddenly before we left for a trip out west to the Rockies at the age of 34 and a young mom of twin boys that were not even two yet. Scary? Oh you betcha. I got mine for a variety of reasons but mainly because I needed to hear. Like the author of this book, I had grown up wearing hearing aids. So getting the implant was a necessity for me and one that I am eternally grateful for.
   
   This book is very interesting in the aspect of technology and how cochlear implant works. This book would be perfect for my husband and dad to read since they love anything technical. But all the references to science fiction turned me off as well as his personal stories about his dating/sex life. I honestly don't care about that so that is why this is rated a three stars instead of a four. If they were trimmed out or modified, then this would be a four.
   
   I really do appreciate the section on how the Deaf Culture changed from the year of 2000 to 2004 (or something like that). I did watch the movie, "Sound and the Fury" and for the first time in my life, I had a glimpse of what the Deaf Culture is about (not that I agree with it). This author went into more details (and got me to order more books on that subject) about something that has changed since I was a child. As a mother of a HOH child who may be a candidate for a CI, this book is helpful in sharing information that I may not get otherwise.
   
   This is an interesting book and a great introduction to cochlear implants and how it affects one man's life and how it affects society today. It is a good read and a helpful one.
   
   4/28/08



3. When I started going deaf, people often said "Well worse things can happen". That is certainly true. Deaf is not dead. But there is a connection that maybe only a poet should make, and Michael Chorost was deaf and is a poet, so he can speak with a poetic inner voice that rings true, even though I will never be able to hear anything really ring again. For now, I have not yet gotten a cochlear implant and simply struggle to hold on to my rapidly diminishing hearing by increasingly expensive and often frustrating hearing aids. Michael's story has helped me to better accept my loss: technology cannot give me back my hearing the way it was, but it can help, and I am certainly not dead. Indeed, compared to Michael and many others, I am really very lucky, since I had many long years of good hearing, and now I look forward to more years of great living even with the hearing loss. I thank Michael for helping me to gain a measured, realistic, perspective on my deafness. This is a book about living, not just about living with a disability.



4. Excellent book for the hearing impaired and non-impaired alike. Much detail on living and learning to adapt in a hearing world. Highly recommended.



5. Though a rabid sci-fi fan most of my life, I didn't become interested in the subject of real world cyborgs until my own precipitous hearing deterioration. Chorost's book is fulfilling on many fronts for me: his firsthand experience and knowledge of cochlear implants (which appear to be in my future); his very human account of his social struggles; and his obvious love and breadth of knowledge of science fiction, to name just a few. To my own surprise, I devoured this book in a few days. One of the most engaging and satisfying reads I have had in years. Chorost, in my opinion is, to quote Dr. Eldon Tyrell (or Rob Zombie, if you prefer): "More human than human" in this work.

5 comments about The Lives and Loves of Daisy and Violet Hilton: A True Story of Conjoined Twins.

1. According to taste, Dean Jensen's "Lives and Loves of Daisy and Violet Hilton" can be read as tragedy or triumph. After being on display almost all their lives, the Siamese twins at the end lived in quiet obscurity, clerking in a grocery. All their lives they had said that was how they wanted to finish.
   
   However, they had also wanted husbands and children, and they never got those.
   
   Unlike most Siamese twins, who have to deal with an array of deficits and health problems, Daisy and Violet Hilton were normal in every other way. Not just normal but, as we'd say today, gifted and talented.
   
   More remarkable than the link of flesh at the base of their spines was their sunny disposition, maintained somehow despite an infancy and childhood that was extremely restricted by a stepmother who didn't want anyone to see them for free.
   
   Their charm was their salvation. Although they were wickedly exploited, over their lives they repeatedly attracted devoted friends who rescued them time and again. These never were able to rescue the twins entirely from the exploiters, or from their own sad inability to judge boyfriends, but they kept the Hiltons from utter degradation.
   
   Jensen interprets their lives as an endless search for love, which he -- and they -- interpreted as romantic, sexual love. That escaped them, but they did enjoy and attract affectionate love, which, it may be, they were always too distracted to quite recognize.
   
   Jensen tells the story at a glacial pace but with plenty of detail. He rescues an amazing story. In the `20s, the Hilton Sisters were as celebrated -- and, briefly, as highly paid -- any of the characters of that wacky decade. Somehow they failed to make it into the popular histories along with such comparatively dull stars as Shipwreck Kelly.
   
   The Hiltons' story is a gold mine of irony, but Jensen is not an ironist. By a odd accident, the women ended up in the same place, North Carolina, where the first famous set of Siamese twins, Chang and Eng, had enjoyed the kind of life the sisters had longed for: surrounded by children in rural domesticity. Jensen fails to make the connection.



2. This was the BEST book that I have read in YEARS.
   The book held my interest.
   The story was great, along with the ending.
   It was not a fluffy gloss over of the twins, but an honest bare-bones account of their lives.
   It was happy, uplifting, tragic, and sad in all.
   The book truly made an impression on me.
   I think about these two girls often.
   It's been 100 years on Feb 5th 2008 since they were born.
   Buy it & read it.
   You will not be disappointed!



3. It may sound unbelieveable, but The Lives and Loves of Daisy and Violet Hilton is the best book that I have ever read. I am surprised at how emotionally involved I became with regards to the twins triumphs and tradgies. The book kept me in suspense from start to finish. I think that the author (Dean Jensen) did a fantastic and brilliant job of really getting you to know the sisters individually. He also touched on things going on in history at the time to help create a realistic and interesting setting. Great photos too. It was also fun to read the book and then watch Chained For Life. So wonderful to see the twins perform. I am encouraging all of my friends to read this incredible book.



4. F. Scott Fitzgerald, perceptibly hung over, possibly still drunk, eyed the Hilton sisters over breakfast at MGM Studios. Daisy and Violet had just strolled into the commissary, taking a single empty chair across from him. Daisy picked up a menu, and without looking at her sister, asked Violet what she planned on ordering. Fitzgerald turned pea-green, ran outside, and retched. The sisters were at MGM to star in the film Freaks.
   
   Daisy and Violet Hilton were pygopagus conjoined twins, united by a "cord of flesh" near the base of their spines. As described in Dean Jensen's biography, The Lives And Loves Of Daisy And Violet Hilton: A True Story Of Conjoined Twins, they were also clever, beautiful, and eminently likable women. And yet, Fitzgerald's reaction to them was uncommon only in manifestation. For something in the sister's irregular form converted even their most trivial activities into enchantments. In merely wanting breakfast, Daisy and Violet inspire our unseemly fascination, exposing us as gawkers, or moralists, or miserable, inconsiderate drunks.
   
   Born in England, Daisy and Violet were just infants when the Brighton press proclaimed the occurrence of "an extraordinary freak of nature." They were toddlers when championed by Harry Houdini. At sixteen, having conquered American midways, they attempted a transition typically blocked to "sideshow freaks": they tried to make it in Vaudeville. In their first performance, Daisy and Violet sang, played instrumentals, and charmed the crowd with tosses of brown curls. Then two young boys, dressed in tuxedoes, joined them onstage. Each took a twin by the hand. Music swelled and the foursome began to glide across the stage, "locked in a pas de quatre." The sold-out crowd erupted. They stood in applause. They cried "tears of joy." They dashed toward the box office to secure tickets for the next show.
   
   Such reactions, sparked at the sight of something as natural as teenagers dancing, explain Daisy and Violet's legendary success. It also inversely illustrates the more common, less noble, response they elicited: dehumanization. Given away by their unwed, terrified mother, the twins grew up chattel to guardians whose parental interest stopped at exploitation and appropriation. Even their first memories, "the movements of the visitor's hands which were forever lifting our baby clothes to see just how we were attached," recall their tragic position: trapped between those who used them and those who wanted only to look. Their childhood was replete with threats of being sent to the "asylum for monster children." They spent most of their time confined in a room - lest someone catch a free glimpse. Years later, while in the office of the attorney who would eventually emancipate them, Daisy and Violet were recounting their upbringing when they were interrupted by sobbing. The stenographer had begun to cry.
   
   Curiously, the empathy wrought by Jensen's faithful portrayal of Daisy's and Violet's lives is no prophylactic to the rubbernecking its details will inspire. It is easy to chastise the surgeons who wanted to saw the sisters apart, but upon the discovery that when Violet got drunk - which she often did - Daisy would get "a little buzzed," the teratologic glee is irresistible.
   
   This conflict resonates loudest in Jensen's chapters discussing the sisters' love lives. Readers will no doubt be moved by Daisy and Violet's inability to find lasting love outside themselves. They will decry the twenty-one states that refused, on moral grounds, to permit Violet to marry. They will disdain the reporters who pressed their eyeballs to the keyhole of Daisy's bridal suite. They will blame the public responsible for this media circus when her introverted husband runs off. And yet, when the reader's friends discover the Hiltons were conjoined twins, and ask the question that everyone asks, the reader will will be quick to answer: Yes, Daisy and Violet had sex, lots of it. Even Jensen, unflaggingly sympathetic as he is, seems unable to resist this salacious urge, ending his story with Daisy and Violet's most enduring "trebling," a burial plot shared with a man whom they never met.
   
   Had Daisy and Violet not been conjoined twins, their biography might well resemble that of those other Hilton sisters, circa 2050. The Hiltons sought and eventually rebuked public attention. The Hiltons learned those well-worn lessons of fleeting fame and wasted fortune. Such comparisons phosphoresce in Jensen's exposition, which can, at varying times, feel either rudimentary or dispensable. Yet, Jensen avoids melodrama. He evokes the Dickensian far more than he uses it as an adjective. And he is delightfully adept with anecdotes, a skill put to memorable use recounting a world populated by the likes of pugilistic bandleader Blue Steel; "flimflam man extraordinaire," Terry Turner; and a villain who actually named himself, Myer Myers. And besides, Daisy and Violet are not those other Hiltons. They were world famous: the Royal English Twins United, made singular by a slip of Mother Nature's hand, "grown together the way tomatoes on a vine sometimes do."



5. I just could not put this book down. These girls were vulnerable, tragic, and strong and heroic all at once. The author reports of a life I cannot imagine. Very well written and researched. DO NOT start reading this book unless you have all night to do so.

5 comments about And I Don't Want to Live This Life: A Mother's Story of Her Daughter's Murder.

1. I liked this book. I read it because I liked the movie Sid and Nancy. This book is about a mother's struggle with an out of control child. It's a good read.



2. THIS BOOK WAS VERY INSIGHTFUL, BUT I'M STILL LEFT WITH QUESTIONS ABOUT THE MOTHER. TO LIVE LIFE LIKE NANCY DID, HAD TO BE TERRIBLE. ALSO, TO LIVE LIFE AS HER MOTHER AND FATHER COULD NOT HAVE BEEN EASY. IT'S ALMOST UNIMAGINEABLE, BUT THE STORY SEEMED VERY REALISTIC. IF ONE HASN'T BEEN THROUGH IT, IT'S HARD TO UNDERSTAND.



3. I loved the book by johnny Lydon [Rotten: No Irish, No Blacks, No Dogs]
   I bought this book after reading Johnny Lydon's book but this one was a let down.
   Sid Vicious was a hot looking punk star and lots of girls (me to) still love him.
   I read a little of this book but it's mostly lady who gets pregnant and she complains and my kid drives me nuts and i wish i had a abortion, blah blah my kid's going to the funny farm,lol,if it wasn't so full of "I this" and "I that"and 'I wanted to go to college, but she was in my way" it could've maybe been a little interesting.
   Whining and complaining just turned me off and I doubt I'll ever finish it. It's like "Diary of a whiny housewife".
   If anybody knows where I can geta copy of Ann Beverly's Family Album please help.



4. This book is very dark and full of contradiction, written by a haunted, troubled author about her daughter who had deep emotional problems, a constant hunger for love , terrible insecurity.The child suffers from feelings of inferiority. A daughter who strove toward academic achievement to win approval of her parents.
   The book unnecessarily documents the affair of the author with a married man.The author includes her lengthy and boring suspicions of her husband's infidelity as well as lots of filler on her troubled marriage.
   
   Although the author writes deep feelings and thoughts, the book fails to fill in the entire picture. It leaves the reader frustrated that so many very pertinent issues are not addressed substantially. She provides psychiatric assessments of the child by a few psychiatrists, but all fails and it needn't have. And here's why...
   
   The child is put on Thorazine by a qualified psychiatrist. The author takes the child off of it. Not giving psyche drugs a fair trial. The possibility of benefiting from this one medication is taken away from the child. I wondered how and why would a parent unjustifiably halt a very possible cure for her own child! She says it's because she found her daughter sleepy and groggy. "This wasn't my Nancy".
   
   Initially all medications of this type have a very, very sedating effect, and the child wasn't on it long enough for the prescribing doctor to titrate the medication to the ideal dosage. This was a chance to live more normal life for the child and it was taken away from her by her own mother.
   Enter Dr. Spungeon. Exit hope for the sick child.
   
   I found this book irritating.
   
   There's hope for us all. For Nancy too, had she been allowed medical treatment. I don't believe Ms. Spungeon had studied medicine or psychiatry, she discontinued Thorazine at the expense of the child's life.The psychiatric and medical providers did not fail the child.Her mother did !
   
   This is a very morbid book, weakly written and very contradicting.
   
   What could have been a story with a happy ending is a story which concludes in the murder of her ill child.



5. I love this book. I had a copy several years ago but lost it in a move. I was in college during the time period of Nancy Spungeon's death & remember wondering what happened to her. Mrs. Spungeon was honest with what life had been like with & for Nancy. I applaud her courage to write about her family's life & their pain.