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SPECIAL NEEDS BOOKS
Posted in Special Needs (Wednesday, July 9, 2008)
Written by Mark Vonnegut. By Seven Stories Press.
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5 comments about The Eden Express: A Memoir of Insanity.
- This is a pretty scary look into the mind of a schizophrenic, from his shakily maintained environment as a late 1960s hippie to his complete psychotic breakdown. It is the worst possible thing you could imagine happening to your child I think, a waking nightmare: Vonnegut describes, with startling talent, his visions. Many of them are remarkable, from a face coming towards him until he is lost in one of its pores, to intimate interactions with angels, while resurfacing in reality every so often. Not only is the horror and lack of control brought to life, but so is the beauty and untapped potential of the human mind, such as his recitation of Moby Dick from memory.
While many of the reviewers scorn the author as a silly naif, I find him sympathetic and brilliant, indeed courageous to explore and expose himself in this way. In the process, he debunks a lot of what was common talk of the period, such as the society and not the individual being "sick" or the total freedom that he thought he could find. Thus, it is a lament on the illusions of the time and about growing up, issues that many critics of the 1960s would do beter to acknowledge. I was also a Vonnegut fan, so the inights into his family interested me.
It is but one window, of course, into a horrible state of existence. Recommended.
- The book seemed one very large introduction to the last 30 pages. I found it rather difficult to read, depending on a lot of slang American language. Still, the message of the book is hopeful. It is possible to lead a normal life, even if you have schizofrenia. The most important part of the book is how the author manages to get out of his frenzy by taking his medication and vitamine supplements. The book would win by making the first part a lot shorter and adapt the language to European English so that also Europeans can read it.
- Mark Vonnegut is a very good writer. He clearly describes, in a very convincing way, his spiral down into and then climb out of serious psychosis. As a mother of a young man recently diagnosed with schizophrenia, this book gave me an insight into what my son might be feeling and dealing with. It has also given me hope that he too will climb out of his madness and have a good life in his future.
- Though I enjoyed this book, I found it so exhausting at times trying to understand what Vonnegut was describing. I know that this is a chronicle of his ever-steepening slide into insanity and I guess Vonnegut is trying to take the reader along the same dysfunctional, confusing and sometimes scary path he was on - if that was his goal, he totally succeeded. It was an interesting topic to read about, especially from a firsthand account, and I was totally absorbed by some of the experiences Vonnegut had. I liked that he shared his experience so honestly, sometimes brutally so, and it gave me a very real insight into schizophrenia that made me much more sympathetic to those inflicted with mental illness.
I wouldn't say this book is a gripping page turner but it's definitely well worth reading.
- I bought and read this book many, many years ago when my son was just a happy baby, still less than a year old. I enjoyed it immensely and tucked it away on my bookshelf, until several years passed away and many moving days later, it perished in disastrous house fire. By then I had become aware that my son was almost certainly schizophrenic, but he refused counseling, obtaining a formal diagnosis and therefore any of the medications available for his disorder. Finally less than a year ago he became afraid of what he might do to others or himself, so much so that he resolved to ask for help and has started down the long road, on and off medications and seeking counseling. It was a rough and heroic thing for him to have done, beginning his recovery by his own decision at nearly thirty years old. He has depended on and trusted enough in one of his twin sisters to assist him along the way. He doesn't yet trust me, his mother, enough to speak to me right now. I remembered reading "The Eden Express", and I thought that it might help him to know that others like him have had success, and that there was real hope for him. In all I have bought five copies of this book in the past month: a copy for him, one each for his two sisters and another to replace the copy that disappeared in a puff of smoke for myself. I hope that he will read it at some point in the future and that he will appreciate it enough to someday speak to me again. I enjoyed reading the new forward and prefice to the book since I first read it back in the late seventies. Thank you Dr. Mark Vonnegut, and his father, Kurt Vonnegut for sharing!
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Posted in Special Needs (Wednesday, July 9, 2008)
Written by Jennifer Rothschild. By Multnomah Books.
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5 comments about Lessons I Learned in the Dark: Steps to Walking by Faith, Not by Sight.
- I had been looking forward to reading about the Lessons learned by a blind person but I was not prepared for Sunday School lessons with each learning experience. I feel the book would have been much better with a little less preaching.
- Jennifer Rothschild writes to make us SEE! She is a wonder and a role model for anyone and everyone. Courage is her badge and the word NEVER enters her life. I honor her and hope to have as much courage and endurance in my life as she does.
- Jennifer Rothchild touches our very souls with her encounters with God and his majesty. We begin to "see" for the first time just how powerful and mighty our Heavenly Father can be to his children. While we listen to her stories dealing with her family and her life as a vibrant mother and lecturer, we often forget she is doing all these wonderful things under the cover of darkness. We forget because there is no darkness in Jennifer's soul. Each chapter, enriched by a personal poem or song, introduces us to the holy love and power of Jesus Christ. Uplifting and encouraging, this book begins a journey for us, and we want to walk alongside this amazing woman for the rest of our days. There is no doubt how much she loves the Lord, and this love enables her to make some wonderful connections to his power and light. I loved this book and would definitely recommend it to anyone who wants to "see" the big picture when it comes to religion, overcoming handicap, emotional triumph, and even awkward moments of victory. As Jennifer runs across a busy street, our thoughts go along with her. Jennifer may have learned lessons in the dark, but she walks in the light of the love of the lamb. That light touches the souls of her readers and transmutes us all to her own special way of seeing. I cannot wait to read more books by this wonderful author.
- Loved the book! Inspiring! Unique "look" at the lessons learned from loss of sight! I loved the "play" on words!
- I loved this book. As it teaches us how people with vision problems have to go though. I have worked with the visual handicap and believe me they can do alot of things you think they cant. A big thanks to the author Jennifer Rothschild. Everyone should read this book.
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Posted in Special Needs (Wednesday, July 9, 2008)
Written by Judy Barron and Sean Barron. By Future Horizons.
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5 comments about There's a Boy in Here.
- Having reading essentially all memoirs of mothers with kids of the spectrum, I have to say this is the one that really "tells it like it is." Judy Barron pulls no punches on the difficulties of managing her son. Sean, her adult son, provides wonderful insight into what his often maddening behavior meant. Mother and son find tremendous respect for each other's strengths and weaknesses. Truly an inspiring book.
- I absolutely LOVE this book!!! This is a very personable book that draws you into the Barron story as they share their family struggles and successes, hardships and joys. I love that Judy tells how she interpreted her son's behavior and how that is contrasted by Sean explaining what he was really thinking in his mind. The differences of thought show the confusion that easily happens between parent and child. Of course, each child is different but this does give excellent examples of the complexity of each personality within the autism spectrum. It is extremely important to communicate and try to understand what your child is thinking so that you can help him. It is equally important to be consistent to work through each issue. I love the honesty of Judy's frustration in the circumstance. And I love that Sean trusted his mom enough to share his life with the world. This book also proves the closeness between parent and child, even when their life is in upheaval. I have a nice collection of books on Autism, Fragile X Syndrome, OCD, OD, Asperger's, temperament problems, anger, and other such helps which were written by world-renown doctors and others but this simple book is, by far, the book I most relate to. Did I say that I love this book? It was the only book to give me hope. Whenever I felt I was going to give up, I'd think of this story. I credit this book for my son doing so well and being nearly normal so that people can't tell he is within the autistic/asperger's realm. :-)
- This book is a must read for parents or relatives of Autistic children. I now understand why my 5 year old son does some of the things he does - it makes him feel good, and he does not understand why mom & dad say no. Sean tells you what went through his mind. Read this book, it will help you understand. Pray for a cure......
- I read this book when my son was diagnosed with autism. The concept looked interesting and what I read opened up the world of autism to me. Sean gave me the idea that I had to get into my son's world and not make him come to mine! And 4 years later, my son is a very high functioning autistic child - it wouldn't have been possible without what I learned from this book!
- I found this book very helpful. I could really relate to Judy's situation and saw many facets of my son's behavior in that of Sean's. It helped me to see that I am not the only one facing this same situation. Maybe my son will mature out of a lot of this too.
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Posted in Special Needs (Wednesday, July 9, 2008)
Written by Andy Behrman. By Random House Trade Paperbacks.
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5 comments about Electroboy: A Memoir of Mania.
- A previous reviewer (El Lagarto) hit the nail almost exactly except, to me, the narcissism here fails to dazzle. While the the author's prose style does uncannily mimic his condition (bipolar disorder, here for some reason referred to by its prior designation of manic depression, making each specific reference to it seem like a literary device), that's part of the problem, really. The helter skelter style allows for no real reflection, and it's the literary equivalent of a sore throat--irritating and hard to swallow in places, especially, for one example, when Behrman relates very specifically his dreams, which blend way too seamlessly with the context of his life at given points, making their content seem invented.
While parts are very affecting--particulary the author's need to apologize for his condition to his parents, and his shame at having failed them--on the whole, this is more of a celebration of a meaningless lifestyle than it is an honest look at a disease. The author seems almost to want to be envied. Behrman is non-self-judgemental to the degree that he cannot even see his own complicity in his condition--the boozing and drugging (ad nauseum, page after page after page, in excruciating detail) can exacerbate greatly the effects of the disease yet it is not until nearly the book's last pages that he sees fit to mention the fact after one of his l-o-n-g line of therapists points it out to him.
That long line of psychologists and psychiatrists points up another fact: Behrman was lucky indeed to be able to afford top-notch healthcare, and it is in part because he takes that for granted that, perhaps, he kept on (and on, and ON) with the self-treatment (liquor, drugs, sex) even while he was receiving what on the whole sounds like excellent treatment--spoiled and rich, he gains no real rapport with a general audience by taking such things for granted and continuing, in his breezy manner (the book IS well-written in spite of its wrongheaded tone and over-aggressive, snarky style, and interesting--I enjoyed the tour of the art world and descriptions of its denizens well enough), to recount his art sales, drug deals, liquor intake, and sexual conquests.
His conviction for having sold at great profit a number of forged Kostabi paintings is dealt with as if he thinks he did nothing wrong except get caught. True, Kostabi's work was itself manufactured, but this does not mitigate for a minute Behrman's own crime--knowingly defrauding buyers and profiting greatly by doing so. We're expected to applaud his dishonesty and to feel fortunate to accompany him abroad while he does his deals; the reader is expected to nod knowingly when a rental car, paid for by a canceled credit card, is blithely left in airport parking because "someone will find it." That's nudge-wink tosh. I came to this book with an open mind and left it with one accordingly padlocked--the great post-punk band Magazine's line "My mind ain't so open / That anything can crawl right in" fits this book to a 'T.'
Being bipolar myself and having struggled mightily with the condition--albeit on a lower-middle-class income sans health insurance--of course I feel for Behrman and his struggles, but his off-putting prose style and unreflective take on the disease in question, PARTICULARLY his failure to acknowledge any blame for the massive exacerbation of his condition via the overwhelming (and preening) accounts of his wretched excesses, renders this book as glib and thus almost as meaningless as the author's lifestyle--not to mention his lack of gratitude for being to the manor born and thus being able to afford top treatment. One does hope he continues this treatment because, based on his prose style and the book's false message, he's far from out of the dark shadow of his disease.
- I work with the mentally ill and have a particularly difficult client who has multiple mental illness diagnoses and a personality disorder. In my opinion, his bipolar diagnosis is the one that has wreaked the most havoc in his life and in the lives of his caregivers and loved ones. Prior to reading Electroboy, I wrote to the Andy, the author, who answered immediately, saying he was very busy, but would write more in a few days, when he was back home. He wrote again, as he said he would and though he was not able to provide a lot of help or insight, he offered what he could, in the way of advice. I much appreciated the author taking time to respond to me. I bought and read Andy's book later (mostly out of appreciation for his help, as the reviews had not been great). After all this, I'm sorry to say that my review of the book is "just OK". It is sort of a diary of events, without much insight into the mind of a bi-polar. In fairness to Andy, he may just not realize how very difficult it is for the average reader, who is not bipolar, to understand the workings of the mind, or the rationalizations of someone who is bipolar.
- The best book on manic depressive episodes with light towards the end of the tunnel. If you or a close relative or friend is in the throes of this terrible predicament, almost a life sentence of sorts, you should read this book. Its not an undertone of pessimism or another will-bring-tears type of book, rather a delightfully readable surmise of manic episodes. The speed of narration speeds up in the beginning with the pace of racing thoughts and then slows down with the downs of depression. A not so thrilling roller coaster ride for the protagonist, but for you, maybe, or even entertaining if you like reading books on psychology. This is not a book about the disease per-se or even electricity or any neurological disorder associated with the term, but a memoir of struggle, perhaps an active and electrical experience of the manic episodes, and the title does justice. The electro-convulsive therapy blends in the title towards the end, although to no avail, another modern snake oil for the refractive nature of the beast. Read it and you will like it, and if you are worried, it is not heavy to lift with hand or mind.
- I really hate to rate any book with only one star. I give the author credit for writing a book that got published. Otherwise, I couldn't finish this one. I bought it largely due to the fact that the author was present at a DBSAlliance conference outside Chicago that I also attended, and I wanted to show support to another person with Bipolar...there the loyalty ends.
This was, to me, almost unreadable. I felt it was too narcissistic, too poorly written, too...well, manic. I mean, I really appreciate reading books by people who focus on themselves when they have a lucid story to relate, but this book was painfully lacking in any lucidity. It is always uncomfortable to me to read or listen to someone who is in the throes of mania - after a certain point you just want to leave to room. Too many words with nothing to say but aren't I interesting, grand, wildly amusing, and don't I live the life. Well, no, you aren't and you don't. A real turn-off. I had absolutely no sympathy, empathy, or ability to relate to this person, and no time to waste finishing this ode to Andy. I mean, in the big scheme of things, who cares?
- As someone that does not suffer from BiPolar Disorder, I was hoping to gain some insight into the mind of someone that suffers from this illness. I never felt that from this book, I could not understand how his compulsive actions actually stemmed from his illness. He seemed to me to be suffering from a huge case of narcissism.
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Posted in Special Needs (Wednesday, July 9, 2008)
Written by Nancy Mairs. By Beacon Press.
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5 comments about Waist-High in the World: A Life Among the Nondisabled.
- Facing chronic disease myself, I've turned to books like this for information, comfort, challenge and ideas. Nancy Mairs is the best I've found for writing honestly about what it means for people (women in particular) to face chronic, degenerative illness. She writes from her personal experience, but I see myself in her struggles. A book to read and re-read.
- Nancy Mairs writes about the human condition with humor, compassion, and ruthless honesty. This is a book of personal reflections about disability, embodiment, marriage, religion, and lots of other things, but fundamentally about the possibility of honestly acknowledging all the pain and confusion in our lives and at the same time--within that pain and confusion--living fully, gratefully, joyously.
Wow. What a gift. Thank you, Nancy Mairs.
This book and "Ordinary Time" are my favorites by Mairs.
- Nancy Mairs is painfully, startlingly brave. Her book is something I recommend, not just for people with MS but people, period. She reminds me of just how powerful telling the truth can really be. We all need this book!
- Reviewer: robert dorroh from Sonora, CA United States Nancy Mairs, with devastating honesty, chronicles life as a cripple (her choice of word) in poignant essays in "Waist High in the World."
Beset with multiple sclerosis and bouts with clinical and situational depression, she offsets these stumbling blocks with joy, candor, eloquence, and cultural and political insights. It is a book for everybody, not just the disabled, for it challenges our fears, cultural hangups and citizenship: "The more perspectives that can be brought to bear on human experience, even from the slant of a wheelchair or a hospital bed, or through the ears of a blind person or the fingers of someone who is deaf, the richer that experience becomes." She attacks the stereotype that cripples must be passive and unfailingly polite in a culture that doesn't want to deal with them: "Beyond cheerfulness and patience, people don't expect much of a cripple's character." Pondering her husband and caretaker George's battle with cancer, she offers a balanced look at suicide in the face of his death. Though she has attempted suicide "more than once," she questions the right-to-die movement, which extolls "rational" suicide: "Since hopelessness is a distinctive symptom of depression, which is an emotional disorder, actions carried out in a despairing state seem to me intrinsically irrational. This last time I clung to shreds of reason, which saved me." Still, she sees suicide as a possibility: "I want to be the one in charge of my life, including its end." Why should society pay for the misfortunes of others? people ask. Because it's what human beings do: take care of one another, Mairs says, adding that it's the government's role to ensure that its citizens are entitled to the pursuit of happiness. Mairs notes that the abled-bodied should aim to preserve the dignity of the disabled. This takes in seeing them as sexual beings: ... "The general assumption, even among those who might be expected to know better, is that people with disabilities are out of the sexual running." As a paraplegic, I admire her advocacy on my behalf. I admire her more, however, for her willingness to work toward the betterment of our society through a rare and gifted intelligence.
- I had to read this book for one of my women's study's classes nearly 7 years ago. It has been too long to remember much of the detail but what I do remember is the depth of the impression that was left upon me. It is a very difficult task to look at someone's life, through their eyes, and experience their total destruction of being...slow....poignant...and startlingly real.
As we discussed this book in class, one of the girls ran out in tears, later coming back and disclosing that she, too, suffered from MS, making the book that much real and impressionable for me.
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Posted in Special Needs (Wednesday, July 9, 2008)
Written by Andre Dubus. By Vintage.
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5 comments about Meditations from a Movable Chair.
- All over the world we should keep praying for the repose of Andre Dubus's soul, for he prayed so hard for the repose of ours. This book, and any of the others, is for the reader tired of glitz but unwilling to be dishonest. Do you believe in poetry after Auschwitz? How about the Eucharist after Columbine? If these are hard questions, read Andre Dubus. He had no easy answers, no quick fixes. Nor did he whine and celebrate postmodern angst while complacently tenured in an MFA program. God but we needed him!
- Shortly after finishing "Meditations from a Moveable Chair," I learned that Andre Dubus recently had died. I was surprisingly startled, considering he was a man I never knew and with whose writing I was merely acquainted. My reaction to the news of his death speaks a great deal about the quality and affect of Dubus's austere and confessional prose. Dubus frequently ends essays in the volume by recalling the moment of the piece's composition, as if he is offering not only an artifice, but the origin, the spot of time and emotion and weather from which the artifice emerged. In some cases this device seems almost redundant because his clean prose seemed already imbued with the sense of being written; especially in the essays recounting manual labor, jogging, or taking churchyard laps in his wheelchair, I imagined a man (resembling the man with a pensive scowl on the book's jacket) hammering away at a typewriter. Despite being about many quotidian things, Dubus's writing reminds me of a few lines of "Song of Myself": "Not words of routine this song of mine, / But abruptly to question, to leap beyond yet nearer bring." Although at times I thought Dubus was simply repeating himself, well, simply, I found the essays to be touching, memorable, and a pleasure to read. "Meditations from a Moveable Chair" is markedly anti-stoic: beneath its equivocal title, the volume effuses the pleasures and pain of life after a literal "wreck of body," and offers itself to its reader as a sacrifice and another one of Dubus's sacraments.
- On January 2000, I visited Mr. Andre Dubus' old house and grave in Haverhill, MA. His house was silent like a library and his grave has not been constructed. I showed his letter for me to his family (his son) Andre Dubus III in Newburyport, MA. Though we have not met before we have had same feeling like a deep grief.
Also I visited the seashore that this book had taken as a cover. I had translated his work just one in several months for Japanese readers in two literary magazines in Japan. He did not kill by himself, I believe.
- Many people are familiar with Andre Dubois's son and his book(an Oprah pick) The house of Sand and fog. Andre Duboius has long been considered a master of the short story, and the eye that served him well at that craft is equally appreciated when turned inward. DuBois was confined to a wheelchair when injured in an accident, and as a result, accepted the challenge to look inward. In essays detailing his struggle with mortality, his failings, his life as a writer and the struggle to find the sacred in the everyday Mr. DuBois is honest and open. At times, you may think the conclusions are a bit too pat or packaged, and yet, there is no doubt in regards to the sincerity.
- A book of occasionally lovely short essays surrounded by a battery of incidental writing that should've been omitted. Dubus at his best, only evident here now and then, offers us writing that builds slowly, gathering a few seemingly unrelated details and weaving them into something uniquely powerful. It shouldn't be surprising then to know that the essays in this book that don't hold up well are all too abbreviated and short, more editorial than essay, ending just as they've begun. His religious thoughts, obviously sincere but still cloying, further interrupt the book's best moments.
Dubus however knows when he's on to something, and the essays here that stand out, such as that concerning the suicide of a gay military officer, show why Dubus earned his reputation as a craftsman. Much like his seminal story "A Father's Story," this essay tells us as much of the narrator as it does of the narrative's events. It's writing like this that shows the gulf between Dubus at his best, and Dubus simply on a friendly ramble, unable to mask his innate sadness -- both before and after the accident that left him in a wheelchair. Perhaps that's what this book suggests most clearly, that Dubus never could quite wheel himself away from a depression that's as present as the author's almost daily upper-case Communion.
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Posted in Special Needs (Wednesday, July 9, 2008)
Written by Kara L. Swanson. By Rising Star Press.
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5 comments about I'll Carry the Fork! Recovering a Life After Brain Injury.
- I never fully understood my dad's head injury, but after reading this humorous story of Kara it made me realize the frustrating effects of brain injury. Just a great book over-all and written on the level of a sixth grader, so it makes it an easy read.
- A delightful book which takes the author from a tragedy and life change to making her new life the best it can be. A wonderful message for those of us having a family member who is a recent traumatic brain injury survivor. It is written with humor but with a valuable message. The chapters are short and written in a manner our TBI survivor is able to read and comprehend it. Thank you for this book.
- A delightful book which takes the author from a tragedy and life change to making her new life the best it can be. A wonderful message for those of us having a family member who is a recent traumatic brain injury survivor. It is written with humor but with a valuable message. The chapters are short and written in a manner our TBI survivor is able to read and comprehend it. Thank you for this book.
- A great read for a survivor or family member of TBI. Slightly larger print and easy to follow story line. This book puts you in touch with the TRUELY important things in life. Showing some of possitive and humorious bumps in her new learning curve keeps this book from reading like a text book. Wow does it feel better knowing that others share similar experincies.
I have purchased several of these, one for my daughter, and a couple for friends to help them understand me now.
If you ever get the chance to meet Kara DO IT, she is uplifting to speak with.
- My son received a severe brain injury in a car accident almost two years ago. He has made a remarkable recovery. However although I ask him how he feels he can't always tell me, says " I just want to be back to normal" I have really wanted to know exactly what goes on in their brain during the recovery -which of course is on going. This book was just delightful. I loved Kara's honest comments and the way she expressed her feelings. My son does not want to read it but my daughter-in-law does.
I have to say though, for all of you parents out there who's child has been diagnosed with a severe brain injury, don't despair, Kara's mild brain injury seems a lot more severe in her recovery than my son's!
Thank you Kara for a wonderful insight into the feelings of a brain injured person. Best of luck for a continued recovery.
Judy Knott
Auckland
New Zealand
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Posted in Special Needs (Wednesday, July 9, 2008)
Written by Kurt Snyder and Raquel E. Gur and Linda Wasmer Andrews. By Oxford University Press, USA.
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3 comments about Me, Myself, and Them: A Firsthand Account of One Young Person's Experience with Schizophrenia (Adolescent Mental Health Initiative).
- As a psych nurse, I found this book to be not only accurate, but very engaging. There are a couple others with different Axis I diagnoses that I'm going to get as well. Thinking of purchasing some for the psych unit to help newly-diagnosed folks understand this isn't the end of the world, there is hope, and there are others out there who understand.
- I've enjoyed the book. I agree that a lot of people with schizophrenia do not accept their illness and we need to understand that.
- A very well written and informative book. It provided information and insight into the illness of schizophrenia. I learned much from reading it and gained new insight and perspective about the disease. We all need to know more about mental illness-only when we all do, can we collectively remove the stigma attached to it. Thank you for writing this personal and painful tale and educating me.
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Posted in Special Needs (Wednesday, July 9, 2008)
Written by Dale Evans Rogers. By Revell.
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5 comments about Angel Unaware: A Touching Story of Love and Loss.
- This little book is a heartwarming love story and a heart wrenching tear jerker all rolled into one. Dale Evans Rogers shares the tale of little Robin, her Down Syndrome daughter who died at a very young age. The story is told from Robin's point of view, as if she is sitting on her heavenly father's knee relating what happened "down there." The heartache of a mother's loss, and the hope of a child's eternity are entwined in an unforgettable tale. I highly recommend this book to any one who has lost a young child, or has had to deal with special needs like Down Syndrome. Be sure to have a tissue box handy.
- I read this book when I was in 4th or 5th grade. The story of Robin Rogers has stuck with me for 35 years. While I have forgotten the details, I remember the essential message. All children are gifts from God, especially the ones that aren't everyone's idea of perfect.
- Until I real Dale Evans' account of her daughter's life, I didn't realize anyone felt the way I do. We lost our 2 1/2 year old daughter this year. She had "special needs," some similar to those of Robin in the book. We always felt that God gave us our daughter and she was our own angel here on earth. This book is a wonderful story of the love between a family, their God, and their special angel. I highly recommend it to any parent or family who have lost a child with a disability.
- My Aunt gave me this book to read when I was in grade school. I am now 42 years old and I still remember this book as being one of the most profound stories I have ever read. I have recommended this book often, I have never forgotten it.
Such a touching reminder for all of us that life is divine and should never be taken for granted.
- This book is wonderful. It so beautifully written from the POV of little Robin giving an account to God of her brief life on earth. If there is a disabled child that has touched your life, you need to read this book. Dale Evans Rogers has written a masterpiece which will benefit the lives of many. Thank goodness God sent Robin into their lives!
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Posted in Special Needs (Wednesday, July 9, 2008)
Written by Peg Kehret. By Albert Whitman & Company.
The regular list price is $15.95.
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5 comments about Small Steps: The Year I Got Polio.
- I loved this book! It is about a girl named Peg who is stricken with Polio. My fav. part was when her temperature dropped by drinking the chocolate milkshake. I would recommend this book for anyone!
- This book is a must if you are looking for a book for your Mother/Daugther book club. We read it when our daughters were 10 yrs. old, but you could certainly be older. All the moms loved it.
- My daughter, age 9, was assigned to read this book as part of a Reading Olympics program in her school. I found it at the library and read the first chapter to her while we were still in the library. She did not want me to stop reading. We read it together every night after she had finished her homework. She was so fascinated with Peg Kehret's story that she would work hard to finish her homework in order to leave time for reading before bed. I highly recommend this book for older elementary and middle school age children. The author offers a very engaging glimpse of her experience as a child their age going through an enormously difficult and challenging ordeal. Her courage and humor in the face of her disease will give children insight into coping skills they can use someday.
- Small steps was an enjoyable book and i would definatley recommend it to all of my friends. During this story, a polio patient named Peg, changes, not facial or look wise but mentally. At first she would worry about winning first in something however when she gets diagnosed with polio those worries change. Now she worries about whether she'll make it or not, and she realizes how lucky she really was without the polio. One of my favorite things abobut peg is that she can always take a sad thing and make it better, such as whenshe needs a wheelchair, instead of outing she learns how to wheelie on it! there is one thing i would warn you about; there isnt a lto of dialoge. If you love dialoge and cant get enough of it, then you are just like me! I dont really like books without dialoge. however, when i read this book I realized it has enough dialoge to keep me coming back for more. Although i really like the way it was written too. When in saw that this was a biography, i hesitated to pick it up. But when i started to read, i realized that this wasnt one of the ordinary boring biographies, but a biography written in fictioin form! Also, if your looking for a book written by the author then that is anothter reasen for you to, go out and get this book. Small steps is written in frist person. The plpot of this book is very easy to follow now read carefully; a 12 year old girl named peg is diagnosed with polio, and is taken to many different hospitals. While she is being transfered, she is fighting with all of her gut to kick this polio out of her system. That is as far as i am going with that.
Wait there is more, if you are also not a fan of long expositions; this book is probably the best one or you. Tyeh exposition is npt long at all. It simply describes where Peg lives how old she is and what she like sto do, and then the action starts.
p.s. if you are going to read this book i hope you enjoyed it as much as i did!
- In our modern age of vaccinations, it seems inconceivable that in 1949, 42,033 cases of polio were diagnosed. It was a disease without a vaccine or antidote that meant excruciating pain, followed by extensive physical therapy assuming that the patient didn't die from complications. There are three main variants: spinal polio, which causes rapid paralysis of the arms and legs (generally asymmetrical), bulbar polio, which causes difficulty breathing and swallowing (and frequently requiring the use of iron lungs as breathing muscles and mechanisms are greatly weakened), and respiratory polio, a combination of the above two. Peg Kehret was twelve years old when she contracted respiratory polio; she was the only victim in her small Minnesota town that year.
Peg recounts her terrifying illness in a very matter-of-fact yet gripping narrative. Paralysis set in rapidly, and she had a fever of 102 for nearly a week as her muscles weakened, requiring her to use an oxygen tent. But Peg was lucky; once her fever breaks (aided by a contraband chocolate milkshake), her recovery is much more rapid than her fellow hospital and rehab roommates. Even though Peg is nearly a teenager, there are small poignant touches of the remnants of childhood; her brother Art sent her a teddy bear that had to be burned once she left the polio ward, and her mother recommended that she donate her old books and toys to the children's polio ward. Peg resists, recalling happy memories with her old books and toys, and is dismayed to find that her parents have redecorated her old room as a surprise.
Peg is an engaging narrator who brings a distant era to life through radio dramas such as The Lone Ranger and the simplicity of a time where books and friendships filled our hours instead of electronics. Her rehabilitation is tempered with humor and spirit; no self-pity here, only the desire to become the best she can be. The Sister Kenny method of polio treatment is described in detail, along with physical and occupational therapy exercises. Peg has a crush on Dr. Bevis, a handsome doctor who makes her feel special by painting her toenails when she's still in intensive care, and promises him that she'll return to walk for him. She makes friends with several other girls recovering from polio, including the bitter Alice, who's lived at the rehabilitation center for ten years after her parents couldn't care for her. The girls are brought together by their shared experiences as polio survivors, and Peg is apprehensive about rejoining her school and the outside world.
The novel is brought full-circle by the sad mention that Peg, along with her former roommates, suffers from post-polio syndrome; around 25% of childhood polio sufferers develop additional symptoms decades after the initial infection, including muscle weakness, fatigue, or paralysis. After working so hard to overcome polio, she's certainly not giving in now. There are also vintage photographs of the author and her roommates scattered throughout. A marvelous introduction to polio's debilitating effects and the power of positive thinking on recovery.
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Small Steps: The Year I Got Polio
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