2 comments about The Sound Of A Miracle.

1. Georgiana (Georgie) was born on May 24, 1965. She made all developmental milestones within normal limits as did her older sister, Dotsy. Speech was the only major milestone that Georgie did not make during her early years. She was nonverbal until she was 4.

   Georgie's mother had many overwhelming issues - a divorce when the girls were quite small; Georgie's aversion for any sound, music included and Dotsy's being diagnosed with leukemia at age 4.

   Annabelle naturally has Georgie tested and sent to early intervention programs. The only place where Georgie appeared to have thrived was at Bellevue Hospital because, as Georgie explained years later, "it was quiet there." Dotsy's health plummets and she dies at the age of 8 in 1971. Georgie, then 6, was sent to a residential facility identified as "Childville."

   Childville sounds like a genuine Chamber of Horrors. Georgie complains about the noise and staff dismiss her complaints. She is overmedicated and complains about how the medicines make her feel. She becomes hostile and displays aggression because she cannot tolerate noise. A social worker who sounded cruel and incompetent from the telling, identified as "Judith" seems determined to block and undermine any and all progress on Georgie's part. When Georgie shows an unusual balancing ability and begs for a skateboard, Judith refuses, telling Georgie's mother that Georgie is "overcompensating a fear." Fortunately Georgie gets her skateboard and is quite proficient on it.

   Georgie is fortunate enough to have summers free of that institutional wasteland. Luckily for all, Annabelle marries Peter, a gentle, loving man. That union produces a brother and later a sister for Georgie. Peter has grown daughters from a previous marriage and it is in this loving, blended, extended family that Georgie blossoms.

   Annabelle decides that Childville is just not the answer and withdraws Georgie in 1976. Peter had accepted a job in Switzerland, and naturally Georgie wanted to join her family. Childville staff threaten to keep Georgie by refusing to release her (how could this legally be done). Judith invokes just about every Freudian cliche possible to block Georgie's withdrawal from Childville. Fortunately, Peter and Annabelle withdraw Georgie and move to Switzerland. The medications are discontinued and for the next several years Georgie flourishes in Switzerland. She learns to ski, is mainstreamed and explains that her aversion for sound is due to having a heightened auditory sense. Luckily, she has been treated by several very humane doctors specially trained in Auditory Integration Therapy (AIT) and this treatment is continued during her years abroad. One can't help but cheer when Georgie dances in the rain, explaining that the rain "doesn't sound like a machine gun anymore." Georgie said AIT literally saved her life.

   After several years abroad, the family returns to the United States. Georgie's records "mysteriously vanish" because the cruise ship she was on met with a disaster and several cartons had to be discarded. The disaster turned out to be a blessing in disguise.

   Free of previous baggage, Georgie attends a public school in Connecticut. She graduates as class valedictorian in 1984 and is currently happily married. She is now fluent in 6 languages including Arabic; is a gifted artist and very spiritual. Georgie is also an author. She has chronicled her life story in "Overcoming Autism," in which she promises readers that upon reading her book they will have a very clear understanding of what it means to have autism. The book is currently available on her web site, but it is worth reading. It is a book you will cherish.




2. This book was so riviting that I read it from cover to cover in four hours straight. I am a mother of a four year old high-functioning autistic boy. With the miriad of treatments now available I sometimes feel lost in my search to help my son. Reading Sound of a Miracle and other books told by mothers of autistic children and their struggles has helped educate me on what treatment options are available and where to focus my tedious research efforts. The author makes it clear that AIT does not produce miraculous results in every child, however, it did for her daughter and that's a story worth being told and read!

5 comments about Falling: The Story of One Marriage.

1. After finding that my boyfriend's mother had given him this book to read after he had a talk with her about marriage! I would just like to know how other readers would feel about this? I took it quite badly!



2. While the author's writing style is compelling, this story's narrator is not totally credible. The reader may find themselves wondering, as I did, whether this book is truly autobiographical, or a fictionalized and air-brushed version of "One Marriage." Either way, what about the WIFE's side of the story? Numerous infidelities prove that the husband in this relationship certainly lacked committment. It sounds to me as if he didn't think seriously about his marriage until his lack of conviction contributed to its end.



3. After having read the book, then read some of the reviews, I was suprised at how outraged some people were at this story. This is probably the most realistic viewpoint about a relationship that I have read in a long time. Does that mean that every man cheats on his wife? No. Does that mean that every woman wants "maintennance" for the rest of her life? No. What it does mean is that sometimes people make mistakes (in this case, several of them), but they must go on. Granted, there were several times where I found myself angry at the author for his actions, but who am I to judge someone elses misfortunes, when we all have skeletons in our closet.



4. I remember reding about this book when it was first published, but really had no interest in reading about yet another failed marriage. Too depressing. But then after reading The Glass Castle by Jeannette Walls and learning that this author is her current husband, my interest was piqued. I LOVED The Glass Castle and was very curious about John Taylor as her husband. So I bought, and read, this book.
   
   I can sort of see why one reviewer here referred to the author as "whining".... But then don't we all when we go through the harrowing, nauseating experience of divorce? I did. And I'm not a whiner. I thought the author was just being as honest as he could. The only part I really didn't understand is what actually happened in this marriage to cause it to be so miserable for each of them. They got married, they did this, they did that, and then he was having an affair since he was so miserable. About what, exactly? Maybe his point is that it doesn't have to be anything specific in this day and age of demanding absolute happiness; anything less means d-i-v-o-r-c-e. Sad.
   
   In any case, I enjoyed the book because men usually don't write about this stuff.... and because I can see why he and Jeannette Walls were drawn to each other. I would have liked to read more about him and Jennette, but maybe that will come in a future book. I do believe that Jeannette definitely deserves a quiet, reassuring, stable marriage and it would appear that John Taylor can provide that for her.



5. Very good read. A tragic biography on how family life can take a wrong turn for no significant reason. I strongly recommend this book.

No comments about Legwork: An Inspiring Journey Through a Chronic Illness.

5 comments about The House on Beartown Road: A Memoir of Learning and Forgetting.

1. I found "The House on Beartown Road" shelved in our local library (Pound Ridge, NY) under Mental Health/Alzheimer's. I don't know who decides these things, but this wonderful memoir ought to be prominently placed along with other contemporary memoirs. Elizabeth Cohen is a fine writer and she deserves recognition for this generous tribute to her 80-year-old father, Sandy, to her daughter -- one year old Ava, and to new-found neighbors on Beartown Road and to friends in the Binghamton, NY, community. Sandy and Ava of these are at opposite ends of the verbal spectrum, one forgetting language and the other learning. Elizabeth Cohen herself is there in the middle, somehow trying to work full time as a reporter, managing day care for the two people who depend on her, figuring out how to survive the winter in one of the nation's true snow-belts, and keeping her own sanity as a harrassed single mother.My own mother is 97 with Alzheimer's and I have a one-year old granddaughter, so this book is close to the bone in many ways. I tell everybody about it. I use it in the memoir course I teach. I want to keep it to survive as a classic memoir and as a year-long account by an un-self-pitying caregiver. Elinore Standard Pound Ridge, NY



2. Few books have brought me to tears. This one did. The author writes in a matter-of-fact way about the heart-wrenching disease of Alheimer's, its impact to her life, and the lives of those around her. I didn't want the book to end. It is a quick read. Great book.



3. What a wonderful book. I have noticed that many who review this book are intimately involved in Alzheimers, be they professional or private care-givers. I don't have anyone in my immediate family with Alzheimers, but I read this as a potential gift to a friend who does. I am grateful that I was motivated to read this lovely, loving account of a disease and the way if effects those who are near it. The author and her family serve as reminders that love comes in all forms, and may be asked of you at the most inconvient moments. Don't wait until you have Alzheimers in your family to read this book. So much gentle learning to be done, so much joy to be given, so many miles we go, travellers through life.



4. In September 2004's Australian Reader's Digest, the story "The Unlikely Gift" had me in tears. It moved me so much that I searched out and ordered the book it was taken from - "The House on Beartown Road". I had been mourning the
   death of a favourite and much loved friend who died from the ravages of a similar brain disease (vascular dementia). Although her body died recently, the soul and the entity that I loved which made her who she was, was taken from me many years ago when the diagnosis was made and the slow but inevitable slide began.
   
   My friend Kath, whom I met in 1980, taught me joy and sharing, she took me into her family as if I was one of her own. As I am of a different background, she taught me to enjoy roast dinners and chocolate ripple cakes. She was a favourite auntie, a surrogate mother and most of all, a best friend. In the later years, I have been unable to be in her presence,
   as I couldn't reconcile the angry, violent person as being the same caring friend I had known. She was diagnosed in her 60's which is much too early and didn't allow her to enjoy her twilight years with those she loved and who loved her.
   
   Elizabeth Cohen's book is a beautiful and simply told homage to the reality of family life and in my opinion, a must read.



5. The author writes of her father's decent into Alzheimer's Disease (being more
   and more child like in his progression of the disease and her young son growing up from a toddler to young boyhood..the opposite ends of the spectrum. A very moving book. I may reread this one.

5 comments about Equal to the Task: One Family's Journey Through Premature Birth.

1. Equal to the Task is emotionally involving, honest and informational. I had planned to read a little before going to bed, and found myself still reading at 2:30 a.m. Mr. Cantrell uses self-deprecating humor to tell his at first very frightening story of Benjamin's birth and struggle for life. I found out a lot about what one would expect to see in a neonatal unit. I especially liked Mr. Cantrell's references to music and the signifcance they play in our lives. I recommend this book for anyone who wants a good read, knows someone who has been through a similar experience, or might be facing one. It will provide both information, reassurance and hope.



2. I read Dail Cantrell's book and at times I found it almost impossible to put down. Cantrell is incredibly honest. Not many of us have the courage to address our most personal doubts and fears and then write about these deep, dark, unspeakable thoughts, particularly when someone else will read them. But the book is also informative, inspirational, and funny. Cantrell told about the day-to-day events that go on in the NICU and about how life somehow goes on even during incredibly stressful times. Sometimes I actually laughed out loud. It's my opinion that the book will provide information, hope, and inspiration for anyone facing prematurity or a child's illness.



3. Althought the book shared a difficult and personal battle against adversity, i unfortunately found it to be dissapointingly weighed down with a dependence on religious faith for the fortunate outcome. Although this is a suitable and sufficient option for some, i personally found it to detract from the book for what it was...a tale of survival against the odds. Uncompelling and light in its narative style and format ... would not recommend to friends in a similar situation. Just one more light-weight text "for the soul".



4. We all wonder how we would "act" if faced with the reality of life's potential dark moments. I read this non-stop after just wanting to peruse it for a moment. It is informative factually but, more importantly, it let's you know you are not alone in feeling a range of emotions you might never expect when faced with adversity. It is also a love story even if it had not had a happy ending.



5. I cried with him and laughed with him through out this book. We also have a child that spent the first few months of her life in NICU. We adopted our daughter and did not know her until the week before she was dismissed from the hospital. From the information that the nurses gave us, we know that she was on one of those rollercoasters the whole time she was in NICU. Reading Mr. Cantrell's book helped me to picture the rollercoaster ride we would of been on if we had the privilege of meeting our daughter sooner than we did. My heart aches when I think of her going through that by herself. We have had many ups and downs with our daughter and her health since she has come home. Mr. Cantrell's honesty about the ups and downs in his faith helped me to know that I am not the only one that can be so strong in my faith one minute and then question God about how much I can endure the next. I thank Mr. Cantrell for his open and honest book on such a hard time in his family's life. I thank him for allowing me to share this experience with his family. I know that no two NICU stays are the same. None the less this allowed me a glimps in the first few months of my daughter's life. I thank him for that glimps.

5 comments about Dancing on Quicksand: A Gift of Friendship in the Age of Alzheimer's.

1. Mitchell's remarkable account of her relationship with David Touff reminds us, regardless of whether dementia is involved, to be respectful and mindful in our relationships with each other. This well-told story is inspirational and informative, and is of especially great use to anyone dealing with how to relate to anyone whose faculties are fading.



2. Mitchell's remarkable account of her relationship with David Touff reminds us, regardless of whether dementia is involved, to be respectful and mindful in our relationships with each other. This well-told story is inspirational and informative, and is of especially great use to anyone dealing with how to relate to anyone whose faculties are fading.



3. Dancing on Quicksand was an incredibly inspirational book. Reading it has made me want to be a better person, listen more carefully, to love others unconditionally, to work harder at loving others where they are. In a culture where we want to get rid of anything difficult, it was refreshing to see what Marilyn Mitchell gained by sticking with David and loving him through his illness. Although this is a book about a person who has helped someone with dementia, it is far more than that. It is a book about what real love looks like. I am just about to open up my copy one more time and read it again. Thanks Marilyn for sharing this rich experience with us!



4. I came to this delightful book from the perspective of a daughter helping to care for my dear mother in the last 5 years of her life with Alzheimer's. Oh, how I wish I had read the book 7-9 years ago for its insights about relating to someone with dementia. Yet I think readership of this book should not be limited to people interested in this growing health problem. The book is a guidebook to enjoying life more fully, especially in the city/area where you live, as the author and David did with the many field trip pleasures of Denver. If you feel that a key ingredient of a good story is how people transform one another through their relationships, you will find yourself instantly captivated by Marilyn's and David's encounters and ensuing bond. They each possess charm, wit, and intelligence. Marilyn has an endearing ability to put herself in David's shoes, trying to understand his shrinking world and helping him uncover his genius. Marilyn's gift for language and her perceptiveness gives this book an energy that carries you to the end and leaves you regretting you're on the last page. You counter the regret by sharing this gem with others.



5. Marilyn Mitchell has done an extrodinary job depicting the life and heartwarming stories of David Touff. Marilyn focused on herself just enough; not too much, but enough to let the reader understand her as the loving caregiver that she is. As the reader becomes acquainted with David throughout the book, they feel wrapped up in every emotion he experiences. My father has Alzheimer's and there is never "one size fits all" formula when it comes to caregiving. From the time I finished this book, I am still carrying David in my heart!

   Marilyn is an extrodinary person and writer. She gave of herself far beyond what the average caregiver or family member could even imagine doing. David was blessed indeed to have had the years with her as his close friend.

5 comments about I Was #87: A Deaf Woman's Ordeal of Misdiagnosis, Institutionalization, and Abuse.

1. I was so touched when I read Anne's book. She went through so much and I cannot tell you how brave I think she is. I wish her all the best. Thank-you Anne. Carole



2. I was #87 is a true story, neither my daughter or I could put this book down until we finished it. It is about a little girl who was severely abused and also diagnosed as being retarded when she was actually deaf and of above average intelligence. The determination and survival of this child is so riviting and also inspiring at the same time. It makes you thankful for what we do have in this life. You will realize that the day to day things we might think of as obstacles or problems are so trivial. I would reccomend this book to everyone. There is a limied supply since it is out of print but it is available through the library also.



3. I am not a fan of reading books, but the title of this book caught my attention. I could not put this book down once I started reading it and finished it over a weekend. I recommended this book to my entire family and I hope everyone gets a chance to read it. I was so moved on how Anne survived through all of the horrible obstactles she faced. It is sad to think that all of her "supposeable friends" during that time in her life took advantage of her the way they did when she needed them the most. I feel like I know her and forever I will think of Anne. I wish her the best and I hope the future for her is the most rewarding, for she has earned it!!



4. Anne Bolander suffered from congenital hearing loss which her paternal grandmother attributed to prenatal exposure to a certain medication. Anne and her twin brother, Peter, born in 1954 become part of a large family. Sadly, their mother dies in 1957 and Anne has trouble navigating in the hearing world. Unable to remain in preschool because of her hyperactive behavior and inability to hear directions, her father, stepmother and paternal grandparents are ill-equipped to meet her needs.
   
   Misdiagnosed as retarded in October 1959 at Johns Hopkins, Anne then serves a five-year sentence at the Stoutamyre School. The "school" sounds like a medieval torture chamber; the children are not educated in academics nor taught self-care. Margie Stoutamyre, the school's director made, in the words of Anne's co-author, Adair N. Renning, Nurse Wretched Ratched of "One Flew Over the Cuckoo's Nest" infamy look like Mary Poppins. Dickensian workhouses pale in comparison to this place.
   
   Children were beaten by Margie at the drop of a hat; if one so much as looked at someone else being beaten, they, too received a beating. Belts, whips and a board with holes were used; children could only use the bathroom three times a day and even then Margie allotted them a certain amount of time which she monitored with a stopwatch. Illnesses did not exempt one from beatings. In one memorable passage, Anne was forced to eat another child's vomit simply because she saw him vomit at the table.
   
   In addition to the beatings, children were locked in the root cellar for days; kept in a windowless seclusion room and even strapped to a chair. Anne Bolander literally survived in hell. Mealtimes were rigid affairs where one had to eat in a certain way and keep a straight spine at all times. Failure to do so resulted in beatings. Anne describes how some children were literally beaten to death and she even recounts how she saw a boy being pounded to death simply because he had diarrhea.
   
   Her grandmother was the only person who was kind to her. In 1964 she takes Anne out of Stoutamyre for a few days to enjoy the World's Fair. By 1965 Anne's father and stepmother have her discharged. Anne, in her words has exchanged one Margie for another. Pat, her stepmother treated her in the same brutal and erratic fashion that Margie did. The only girl in a houseful of brothers, Anne concluded that being male was the way to survive and that "love" meant "being beaten" because she had been told by Pat how much Margie "loved" her.
   
   The one bright spot in her life during that period was the 1965-1966 school year she spent at St. Mary's. Kind, loving nuns nurtured her and helped heal much of the harm that had been inflicted upon her. Sadly, she is forced to leave the place because her father has been transferred to another state.
   
   Anne's secondary and adult years are marked by social unawareness. She is easily mislead by those who are not well meaning and this pattern of gullible trusting follows her into the workplace. She thinks the nickname "Retard" is an honor because she wanted a nickname "like the other kids," not realizing the stigma attached. She steals gifts so as to gain popularity and is willing to do anything to have people like her. While understandable, the results are no less devastating.
   
   Anne graduates from high school in 1974 at the age of 20. She spends a summer in a hospital training program at a college in N.Y., but finds that the adjustment was more than she was then able to make. Anne exceeds her father's low expectations of her by not only graduating, but buying her own car and paying for the insurance herself after taking driving lessons. She spends the next number of years living in her own mobile home and with friends, some of whom use her.
   
   Luckily, Anne meets angels, such as Ruth and Glenn, who help her navigate tricky social terrain. Ruth encourages her to fix herself up; Glenn tells her what certain obscenities mean so she will no longer fall prey to the rude and mean spirited jokes her co-workers play. In time, Anne learns these things.
   
   Setbacks occur, such as when Anne is raped by her father in 1979. She spends December of 1980 in a hospital, sorting out the problems in her life, starting with Stoutamyre. By the time she is released in early 1981, Anne is ready to put her life together. She moves out of one bad household where she was being monetarily exploited; becomes active in the deaf community and reconnects with her youngest brother. In March of 1984, her father remarries and Anne has by then realized that with the exception of her youngest brother, she has to cut her losses where her family is concerned. The final blow was when her father and stepmother argued over her brother's surgery when her father said he was not going to spend any money on his son as he was no longer a child.
   
   A hard, intense and much needed book, Anne is the voice of inspiration. She has survived in hell and, like the phoenix risen up out of the ashes. This book makes me think of the passage from Scripture and related song, "On Eagles' Wings."



5. This is an excellent recounting of the events of a life, but it is largely unemotional. The horrors of the primary school are not fully documented, leaving the reader with the impression that it must not have been all THAT bad - it was horrific, of course, but we don't see enough examples to really feel sympathy. Additionally, we never learn many personal things about the author, such as how she feels about her deafness (although this probably results from her stunted emotional growth) and why she felt compelled to write the book.
   
   It is a good book, however, and if it were not so difficult to track down I would recommend it to anyone interested in the subject matter. But because of the controversy surrounding its first printing, "I Was #87" is expensive and hard to find. Upon finally obtaining it, some readers may feel as I did - that the effort was greater than the book warranted.

3 comments about The Seeing Glass.

1. Jacquelin Gorman was born in a special family; her grandfather had been one of the world's best eye doctors, she has one brother and three sisters, all of the children on her family have watery blue eyes, and her brother, Robin, was [mentally handicapped]. This book is consisted of how Jacquelin recovered her eyesight and of valuable memories that has to do with Robin. Jacquelin had been scared of the dark ever since she was a little girl. After she lost her eyesight, Jacquelin went crazy. She had first tasted how it feels to be isolated. In the total darkness, she followed the footsteps of Robin's childhood by dreaming things that happened to Robin. She experienced several heart-breaking and heart-warming events that brought hope and light into her darkness.
   I don't really understand some of the feelings that the author described in this book, but I am sort of touched by some of the scenes that came up in her memory. Through these scenes, I can see a little bit of how [mentally handicapped] people are treated in real life. They are despised, treated unfairly, and always seem to be the target for bullying. But, I can also see how people can still be so passionate and nice even when they are [mentally handicapped]. I learned that being [mentally handicapped] is simply having to learn slower than most other people. Being [mentally handicapped] doesn't mean that one loses his or her ability to care and love other people. It also doesn't mean that a [mentally handicapped] person doesn't need to be loved and cared for.
   I think the best part in this book is when Jacquelin recalled a memory of Robin being taken away into Rosewood, a mental hospital. One time, Jacquelin witnessed the way Robin was brought into Rosewood hospital. At first, her mom drove Robin to the entrance of the hospital. Then Robin started to scream, trying to show how much he hated this place, but after a while, he calmed down. After he got out of the car, he said to Jacquelin, "I love you." But right before they entered the hospital, Robin screamed once again and ran back to the car. He told Jacquelin to unlock the door so he could get in, but her mom told her to keep Robin outside. Just when Jacquelin was about to open the door for him, two men came of the hospital and wrapped Robin in a big, white jacket; then they poked a big needle into his arm, which caused him to stop his struggling. Jacquelin didn't have the chance to tell him that she loves him too.



2. As the parent of an autistic child this book touched every nerve in my body, from the mother who is tormented to the children (siblings) who don't understand, to the grandfather who says Robin must go to an institution to save the rest of the family. For a short time, the author goes blind (of course, when and if her sight returns is not known while she is struggling through this terrifying bout of blindness). While she is trying to navigate her own new world with her family, she dreams of her brother. While her world is black and white, she dreams in color and has vivid recollections of growing up with an autistic brother in a time when nothing was known about autism. I have had people tell me they cried at the end of the book from an overwhelming sense of sadness. But, I felt oddly at peace that this sister was able to develop a full blown appreciation for her brother and now, as an adult, has a tender memory of him and for his place in the family.



3. I am Jackie Gormans niece. I am friends with my cousin Kelsey and Ben and they visit a lot. And i have visited them. i am kylie mcbride.i have a brother william gorman mcbride and a sister emily woods mcbride. . i am sally's daughter. i am ten years old. i love this book because i know all of the characters and it was really good to know about jackie's life. it helped me understand some things.

5 comments about Angel Mommy: A Story of a Bulimic Mother.

1. A Reader from California. Not having a first hand experience with an eating disorder---I found this book very informative and right to the point. The author gives the reader insights that are poignant and with an honesty that made for a clear understanding of what one goes through with this condition. I for one have gleaned a new understanding and compassion for anyone who goes through this. I recommend this easily read book to everyone to gain a first hand appreciation of this wide spread compulsion.



2. I first came across this book in a mothers club. I had heard through my playgroup that she (the author) was in the local papers and believe it or not in the same mothers club! Out of curiosity I read her book, and as a person I was appalled (however the woman in me somehow understood), as a mother I was mortified.

   How could she do this!? The answer - bulimia. Here is a all guts no glory book of a person, caught up in an estranged disorder. Linda K. recounts moments in her life that could only be fulfilled through bulimia. This book gives people a REAL insight to the real world of bulimia, I applaud her courage.




3. As a mother of three teen-age daughters and someone who has had no experience with eating disorders, this incredible tale of a bulimic mother was a true eye-opener. I encouraged my daughters to read it and after doing so, we were able to have some healthy, honest discussions regarding eating and body-image issues. Ms. Krikorian's raw, honest account of her struggle with bulimia is an inspiring story. I wish her the strength she needs to control this disorder and the hope for a possible recovery.



4. I really have to say that this was a very unique book. This woman is funny, she has a lot to give, she does not sugar coat things in the least. She gives a realistic discription of life with bulimia, and does not try to wrap things up in a nice perfect package. There is no sugar coating. This woman is plain and simple crazy, but at least she admits it, is not ashamed of it , and does not make excuses. She is like the typical eating disorder patient. They really do to an extent enjoy the disease. I loved the fact that she slammed the insurance companies. This should be required reading for anyone who wants to understand more about the disease.



5. Having suuffered from ED's for 15 years & being a Mom myself, I felt I could totally relate to this woman's story. The only reason I didn't give it 5 stars, was I felt it was too short a book for the price. If any mother you know & care about is suffering from an eating disorder, I recommend you read this book.

1 comments about Learning to Live With Huntington's Disease: One Family's Story.

1. So many people have written rave reviews to the Sulaiman's and the publisher on this book, I was surprised not to see any posted under Amazon's book review!
   
   Huntington's Disease has been so intricately entwined into the fabric of my life since the early 1980's when my only child, Kelly, was diagnosed with the Juvenile form of this devastating disease. Throughout Kelly's life, and since her death at age 30 to complications of JHD in 1998, I have been deeply involved in trying to help families living with Huntington's Disease by providing resources and support where I can. "Learning to Live With Huntington's Disease: One Family's Story" is one of the best non-fictional books on HD to be written since Carman Leal's "Faces of Huntington's" was published in 1998! Whether you are a professional involved in providing support to HD families, a person diagnosed with HD, a young person growing up in an HD family, a person at-risk for inheriting the disease, a friend or a relative of a family living with HD, or a spouse thrown into the role of a "caregiver" in an HD family, each chapter in this book not only will touch your heart but will provide you with insight on how this disease affects every single aspect of the life of anyone who is living with HD!
   
   I highly recommend reading "Learning to Live With Huntington's Disease: One Family's Story"!
   
   Jean E. Miller
   HD Patient Outreach
   HDSA HD CoE at USF~Tampa, FL.
   HD Links: http://get-me.to/hdlinks