5 comments about Curveball: When Life Throws You a Brain Tumor.

1. Having just undergone my second brain surgery, I can attest to the fact that this book will prepare anyone who is going to undergo this type of surgery, and would be especially helpful to a family member who wants to understand what their loved one will be experiencing. Liz masterfully interweaves the unvarnished facts with humour, making it delightful read. I would loved to have had such a book to read prior to my surgeries!



2. I like this book, but I'd only recommend it to people that have undergone brain surgery. I have, so I understood where she was coming from. But I wouldn't loan it out to any of my friends because they probably wouldn't enjoy it.



3. This book is sooo well written and gives an excellent account of Liz Holzemer's personal journey with a brain tumor. This book in my opinion, is an inspiration to everyone that has any life changing illness. She relates her tricky ordeal in a straightforward and truthful way exposing her emotional state and brings quite a lot of humor to her story. I strongly recommend this book to be used as a manual for anyone who has a brain tumor, knows someone with a brain tumor as well as doctors, health care professionals, visiting nurses, psychologists...
   I have undergone three brain surgeries and wished that someone had suggested this book when I first was diagnosed(mine was the size of a lemon)so I could have tackled it head -on so to speak. An excellent manual with pertinent information. A very enjoyable and enriching read.



4. Very well written and interesting account, while not a brain tumor patient I still found the book very informative and entertaining. I believe anyone suffering from a meningioma would find this book inspiring and uplifting. For those of us without a brain tumor it gives us an insight into the life people with this conditiona lead.



5. As the daughter of someone with a meningioma I found this book fantastic. In fact, I literally didnt put it down - I read it from cover to cover in one go. And then I passed it onto another family member, who read it and passed it on again. We have now all read it and have since enjoyed discussing it with each other. There were many snippets that Liz shared that we could all relate to. I highly recommend this book to anyone dealing with a brain tumour and all their loved ones.

2 comments about The Mind Tree.

1. I have a 14 year old non-verbal autistic son and each time I picked up the book I was moved to tears. Reading Tito's book was, for me, like getting some insight into my son's thoughts. Tito's behaviors and fears matched so perfectly with some of my sons. Tito seems to be a very insightful young man. I found the book interesting, moving, even humorous at some points. I would definitely recommend that anyone who has a child who is autistic, or knows someone who does, read this book.



2. The Mind Tree is the best book I have ever read on Autism. For the first time I was able to understand what goes inside the mind of an autistic child. I first bought the book for myself, and subsequently have bought 5 copies for friends or aquaintances who have a loved one with Autism.

1 comments about La Clinica: A Doctor's Journey Across Borders (Literature and Medicine Series).

1. "La Clinica" was a wonderful read, juxtaposing and weaving the
   various times of Dr. Sklar's life, from his childhood to his
   internship to his Clinica days to his affiliation with the University
   of New Mexico as head of its Department of Emergency Medicine, when
   he and his wife were separating. This is the story of
   what Freud once distilled as the two things most important in a man's
   life: meaningful work and a meaningful relationship with a woman. And
   in Dr. Sklar's case, we see his earnest attempt to make sense of both
   when each is turned topsy-turvy, to remain grounded as best he can
   under the circumstances. At La Clinica's best, the reader, young or
   old, will be called to task to examine his or her own life, asking,
   depending on age, either, "Is this the path I wish to take?" Or, "Why
   or how did I come to take this journey?"

5 comments about Doc Susie.

1. Doc susie was a very good book. I enjoyey how Susan Anderson made her dreams possible.



2. This is a worthwhile book for those who enjoy reading about 19th and early 20th century medicine, or the trials of women country doctors. It does not venture into the medical beliefs of the time, but one can gather this information reading between the lines. Doc Susie's story inspires awe at the great sacrifices she made in order to practice medicine.



3. Doc Susie embodied a hardy pioneer spirit in the face of dreadful odds. TB, a general disregard for women physicians and awful living conditions in the high country of Colorado pretty much sums up what she faced at her new post. Not to worry........she prevailed! While she longed for a traditional family (husband and children), it was not to be. She DID make a life for herself, regained her health and brought the best medical help available at the time to the people of the area. Whadda' gal!



4. Her story is incredible and inspiring! I had the privilege of going to the Fraser area immediately after reading the book. A museum has some of her things, including items mentioned in the book. I was really moved. You will not regret picking this one up!



5. Everyone I know who has read this book loves it. I am a Colorado history buff and have been to that area more than once and know that her life must have been incredibly difficult. What an impact she made on the lives of others by her dedication and sacrifices.

5 comments about Welcome to My Country.

1. Welcome to My Country is a beautifully written narrative about psychotherapist Lauren Slater's challening work with mental patients in Boston. She goes to greath lengths to get inside the minds of each patient, following their schizophrenic dreams and fears, their history, and treatment. Her prose is vivid and poetic, albeit a little overwritten at times. Her metaphors are far-fetched, but the language is astounding. The ending is a bit short, but works well. The reader does not get a true grasp of Slater's own private struggle with mental illness, but it is touched on enough to show how her compassion and experiences set the groundwork for her entrance into the mental health field. It is more lyrical essay than psychological text. For all intents and purposes, this book seems to have more to do with Slater recognizing her own voice and self in her patients (much countertransference) than the patients themselves. However, the memoir, at its most basic point, is a fascinating study into Slater's own psyche.



2. Lauren Slater has guts. We've had decades and decades of first hand accounts of mental illness by those who have worked with the afflicted, but Slater is singular in her unwillingness to spare the layman's sensibilities.
   
   Slater's book is a first hand account of her journey through life with a house full of schizophrenics, some doomed and some just in the reach of redemption. She herself is driven to the emotional brink trying to bring something whole out of these irretrievably wounded people. In one scene she practically breaks down trying to convince a group of schizophrenics that the imaginary UFO they want to take off in as a group simply isn't there. She works with a borderline sociopath male chauvinist, every inch the ruthless alphamale, who brutalizes his girlfriend and in his spare time watches sadomasochistic pornography films--all symptoms of his underlying terror of the feminine. Miraculously, despite her disgust with this guy, she gets somewhere with him.
   
   This is not light reading but necessary reading.



3. Read this in the library of Slater's secondary school when I was in hs, but didn't know it was by a graduate. Looked at it from that perspective of knowing who it was by this time w/out knowing that I had read it. I knew that I had read it because I remembered Marie's cracking peach nail polish. I have remembered that image forever; it has been echoing in my mind. I think that I was skimming the book, and hadn't read the personal part before too. So, if I remembered parts of the book after probably 7 years, this has to be an extraordinarily poetic book. After I read the book, I remember thinking maybe I should become a psychologist (i really don't know what i am going to do yet, but the book really did make an impression on me nevertheless). So, this book deserves really to be in any library, and not on the basis of the author graduating from that school! The author comes across as being very compassionate and well spoken. She writes like an angel.



4. Her work is not a work of non-fiction. She admits that she has changed the identities she has written about and confounded their settings. Therefore "Welcome To My Country" should be regarded as a work of fiction. But that is nothing to spit on.
   I must confess that I feel a sense of dread and perverse anticipation when I look back on my reading of this book. Doctor Slater engages in what can only be called the art of vulnerability. She peels back the petals of many, many roses until we find, with a bit of shock, that the most central rose is both hers and our own. Her prose is cool but her spirit is warm. The theme of the erotic is constant through out this book and in all of its episodes. I was bewildered by this until in a sequence that lies near the end of the work she reveals exactly what country we are being welcomed to. Her own confessions are gut wrenching and are the kinds of expostulations that make me cringe as if I was being compelled to pay ear to the screechings of fingernails dragged across the surface of a black board.
   There is a great beauty in this book. There is also something slightly clumsy and sweaty as Doctor Slater strives to make sense of the madness of her clients and her own madness.
   A memoir of madness. Whose?
   I will return to this book often.



5. Lauren Slater presents a vivid tale of a therapist' s sojourn, examining mental illness from both an insider's and outsider' s perspective. Slater takes us on a journey through her own work in hospital settings, culminating in a personal coda. She confronts unbelievable countertransference at Mount Vernon, the same place she was hospitalized, with a client suffering from a similar constellation of symptoms. She is unique in the mental health community, populated by professionals attempting to abstract themselves from their clientele in the name of objectivity. Although, my psychoanalytic frame dictates an objective stance, I was deeply touched by her sincere humanism and willingness to explore the subjective world of her clients' alien worlds.
   
   Before exploring the clients, their illnesses, the therapist and the treatment interventions, I feel compelled to comment on Slater's unique writing style. Her prose is the result of the ability to paint from a diverse palette of lexicon, style, theory and foremost, metaphor. I was whisked through her world, experience and firm theoretical grounding, giving way to a clear image of her thought process and orientation as a therapist. Her writing style is lush and sensual, like her unique approach to therapy, crossing boundaries rarely trespassed by the orthodox therapist. At certain points, I was left questioning whether this was bravery, or a misguided foraging into the taboo realm, which leads to dual relationships.
   
   Often, clients with Axis Two disorders, such as Peter, have a wide repertoire of tactics at their disposal, testing the boundaries and weaknesses of the attendant therapist. I conferred with one of my colleagues, and they agreed that some of her sexual imagery, in describing herself as well as Peter was a bit much, to say the least. For example, she states, "I imagined myself in sequins, my crotch sprayed silver, as I, nude, gyrated to the beat of his voice" (p. 53). Later, she asserts, "in his admission of pain he was now naked; he had pressed himself against me and I wanted to celebrate, not violate, this stance" (p. 59). The list of sexually charged metaphors is simply too long for this brief review. However, a few more examples might help to make my point. She goes on to say, "and I, well, I grew to love him and love the strength in his slow surrender" (p. 61). Sometimes, I was overwhelmed with laughter, writing in the margins "this is too much". For example, try this sentence on for size: "it is a dangerous thing for us, we people who grow up sucking the steel nipples of this country's missiles, many think living in the world is living in war, women who think their bodies are Molotov cocktails that must be detonated, destroyed, before they are munched up by their own metabolism" (p. 62). In the words of George Orwell, "The writer either has a meaning and cannot express it, or he inadvertently says something else, or he is almost indifferent as to whether his words mean anything or not"(Orwell, 1950). Simply stated, although she is an Ivy Leaguer, her metaphors are mixed as "people sucking steel nipples" clash with munching metabolisms. This is not an isolated example of where I felt metaphors mixed, and poetry superseded the message. Frankly, my impression of Peter was summarized in the margins as, "he is a sociopath", "she's turned on" and "he's got her where he wants her". Perhaps, this is too simplistic, however this was my reaction.
   
   Nevertheless, her work and description of the schizophrenic clients is noteworthy. It helps the shed light on the discombobulated world of the schizophrenic, and her daring and adventurous discarding of the banal "activities of daily living" foisted upon her clientele. I think there is a connection between R.D. Laing's views on insanity and Slater's subjective willingness to voyage into the mind of madness. Perhaps, it is because they both have a grain of insanity within their own minds. However, as Aldous Huxley once stated, "sanity is a matter of degree"(Levy, 1997). I found the hospital settings, frightening, rigid and mundane, until Slater injected some humanity into their sterile milieu. Perhaps, this comes partially from her being a former mental patient and seeing things from the inside looking out as well as the outside looking in.
   
   In contrast to Maslow, Slater's vision as well as her life is circular, not linear. Like so many of us, she finds herself walking down the same path and confronting the past and its ghosts. Emotionally, this resonated with me on a personal and intellectual level. Her client, Linda Cogswell, is described as bulimic and borderline among other things. Slater courageously admits, that she to was diagnosed with an eating disorder and a borderline personality as well as hospitalized at the same facility in which she treated Linda. Lauren Slater allows the reader to catch a glimpse of her unique beauty, and talent as a therapist and person, readily admitting identification with the client. Vis `a vis identifying with Slater as a multifaceted human being, I was able to readily accept the notion that borderline personalities and mental illness involve people as opposed to categorical descriptions. Lauren Slater renews a sense of humanity in writing about her clients, their illnesses, herself as a therapist and her unique approach to therapy. I enjoyed this novel a great deal and was enlightened, entertained and invigorated by her refreshing memoir of madness.
   
   
   
   
   References
   Levy, D.A. (1997)., Tools of critical thinking: metathoughts for psychology. Boston: Allyn & Bacon.
   Orwell, G. (1950). Shooting an elephant and other essays. London: Harcourt Brace Jovanovich, Inc.

4 comments about Change in the Weather: Life After Stroke.

1. I found Mark's book very informative. I am living with a father that had a stroke last year and it was interesting to compare the stroke and recovery process. The major differences between the stories is that my father is 81 and I found him within five minutes of the stroke so he was able to benefit from the clot busting medication. Many of the rehab exercises for my father are similar to Mark's. Until I read this book I had not been able to get this information from someone that had experienced stroke or was caregiver for a stroke patient. All too often when I spoke to someone that had a loved one suffer a stroke their story usually ended with a death shortly after the stroke. I'm thankful I found him so quickly and that he survived the clot busting medicine. They let you know when you sign the consent that your loved one might not survive it. That is an awesome responsibility for anyone. I've encouraged everyone I know to talk to their loved ones so they will know how you feel should they every have to make that decision for you.



2. 
   
   MarkMcEwen has written an excellent book for those who have had a stroke or are caring for someone who has had one. His positive message is one of hope for all.



3. CHANGE IN THE WEATHER: LIFE AFTER STROKE tells of a news anchorman at the peak of his life - and enjoying it - when he suffered a stroke. Mistreatment and misdiagnosis nearly cost him his life - and this memoir documents these issues, also following his rehabilitation from a massive stroke in which he lost some of his greatest gifts. A powerful account of triumph over harrowing physical issues evolves.
   
   Diane C. Donovan
   California Bookwatch



4. I had a cerebellar stroke in March, which caused this communications major and ex-Micrsoft college recruiter to become a disabled person who couldn't talk --overnight and very unexpectely, just like Mark..Mark's book is a good chronolgy of what that feels like and a good inspiration for recovery as he made a 100% comeback.
   
   While I don't have his connections with Bill Cosby or presidents (and admire his newfound verve to use those contacts to get the word out about stoke), I share and admire his drive to recover - and that of his wife to support him...Stroke is not well known, we hear so often about cancer and heart attacks but it is the number one disabler - 455,000 americans will be struck by it this year, or one every 15 seconds...I had none of the prediposing symptoms (high blood pressure/smoker/family history/overweight) yet I still had a stroke and it has changed my life - just like it changed Mark's life into a recovering disabled person who had to learn to slow down and value a second chance at everything..we did not die and there is a distinct silver lining to stroke, which Mark's upbeat book chronicles...it was an easy read and a good boost...a profile in a different kind of courage for friends, family and Mark himself...Unlike many afflications, you CAN recover from stroke...it takes time and oomph.

5 comments about The Knife Man: The Extraordinary Life and Times of John Hunter, Father of Modern Surgery.

1. Wendy Moore does an excellent job of bringing John Hunter's life and accomplishments to us in the context in which they occurred. This book is not only a well written biography on a subject deserving of widespread recognition; it also serves as a great historical reference with intersections into minute aspects of the lives of other notables. The horrific conditions under which individuals in the 1700s underwent surgical procedures are elucidated in this work. In a time where there was no standardized process of peer review, the work of this genius was plaigarized by several who attended his anatomy lectures and much of his writing has been lost to us because of the plaigarism of one of his pupils, who eventually burned many of his papers following his death after he had used them as resource material for discoveries he himself claimed to have made. I am glad that this biography has done some justice for a previously obscure figure. That his conclusions about the evolution of species predated Darwin's birth is a testimony to his relentless pursuit of material fact in a climate where disputing biblical accounts of human origins was considered apostate.



2. Fantastic, intriguing, fun to read. Brings a deep respect to our progenitors and how they ever survived those "unapprised " years. It is a great tribute to the great man John Hunter.



3. John Hunter was one of the champions who introduced scientific methods to medicine over the opposition of those who valued ideology over evidence. He fought this battle only about 225 years ago when doctors often prescribed bloodletting. John Hunter paid attention to evidence that it was sometimes best to leave gunshot wounds untreated rather than apply the remedies physicians often applied at that time. This book is fascinating and is written very well. I was shocked to learn how primitive medicine was only 225 years ago. Our recent progress under the scientific approach has been astounding. John Hunter's personal story was also a very dramatic rise from poverty to recognition as his nation's leading surgeon and physician.



4. A thorough, very well researched biographical account of the Georgian surgeon/naturalist/anatomist/educator John Hunter. I think anyone, after reading this book, will be amazed that Hunter's name is not more commonplace today. He was a revolutionary within surgery and medicine and worked with and trained others who shaped medicine in the U.S. and elsewhere. For anyone interested in history, science, or medicine, this is a valuable and interesting book to read.
   
   Wendy Miller obviously went to great lengths to research the subject matter for this book and is able to present what at least to the less informed reader seems to be a genuine account of Hunter's life. While she is obviously enamored with Hunter's ingenuity and approach to his craft, Miller also points out the many places where his theories were incorrect and where he obeyed convention, albeit incorrect, rather than pressing forward with his hypothesis driven approach. Each chapter of the book is titled after some artifact or preparation of Hunter's and describes the situation regarding it's creation or acquisition by Hunter. While this makes each chapter somewhat a story in itself, it is at times difficult to follow the events of Hunter's life as they are not presented chronologically. A timeline is at the back of the book, but often chapters overlap by ~5 years, such that the beginning of a new chapter must revert back 5 years before the end of the preceding chapter. This is effective in spots, as Hunter's diverse interests are presented one by one rather than in parallel with his other concurrent academic pursuits, but the structure sometimes complicates descriptions of Hunter's interpersonal relationships.
   
   Overall, this is a very well done book and should be read by anyone interested in science, history, or medicine. It is regrettable that Hunter is not more widely appreciated, but this fact makes the book all the more amazing/valuable.



5. An interesting and historical view of one very early practicitioner who realized the importance of cleanliness. Very well written and interesting for anyone intersted in history, medicine and surgery; or just a great read!

5 comments about Married to a Bedouin.

1. This New Zealand-born woman with her Dutch ancestry talks about how she wasn't brave or didn't do anything extraordinary: she merely fell in love with a wonderful, decent, funny, charming and intelligent guy -- who happened to be Bedouin and live in a cave in Petra. I met them in the teahouse across from the amphitheater in the spring of 1989 when Salwa was a little girl and the boys were toddlers. Marg and Mo became our lifeline there and secured one of the new government houses in Umm Sehun for us to rent -- with a hot shower and all. We returned in the fall for three more months, learning so much from Marguerite: how to weave a tent from goat hair, to make margluba in one pot and attend a wedding. Each year for the next 10 years (until 2000), we remet and rekindled our friendship, having incredible fun with my own bint (daughter). Now, reading her book, I cherish each page, understanding even more about their special lives and what it means to be part of a Beduoin family.
   It is a book that is so pertinent today in understanding another culture and how our American government is clueless about that part of the world and the vastly different outlook, superstitions, meanings, approach to everyday living that the local people have. Bravo Marguerite.



2. Read this book right after touring Petra. It enhanced my feelings and memories if the place immensely. Well written. It gives a very good sense of what life was like in a Petra cave and being married to a very creative Bedouin man and his very large extended clan. Recommended highly, although I'm not sure how much I would have comprehended without having been there myself.



3. If you want to understand Arab culture no better place than to start here. You get a two for one. Petra is one of the great places on the globe and the people there are very special. Marguerite writes a cogent and charming account of her life from New Zealand to Jordan and her family in Petra.



4. Having been to Jordan several times and hoping to go back (I am totally in love with the country) I picked up this book at the airport for an in-flight reading.
   
   I thought it would be just another account of a western person whining about the ''wrongs'' of Muslim life but I was so pleasantly surprised that I couldn't put this book down.
   
   Margaruite's story is a matter of fact account and no preaching. She writes it as she experienced it and offers us facts which we can then make into whatever we want. She offers no criticism of the lifestyle nor does she compare it to the western lifestyle as many of the similar accounts are written nowadays. She also isn't a ''hippie gone native'' as she says many people used to see her as.:)) She simply fell in love with a man and adapted to live her life in his culture. You will enjoy the funny details, and I especially liked her account of the trip back to New Zealand with her Bedouin Husband.
   
   I admire her story, not just for the story itself but for the way it was written.
   Although I have been to Petra several times, after having read this book I went again to experience it in a totally different way, not stopping to admire the ancient Nabataean city but the people who live there and around at the moment. And the experience was unforgettable. We do tend to forget observing the people when doing the ''touristy'' thing at the historical sites. And ashamed, I must admit that the first couple of times around I was annoyed by the ''Bedouins'' trying to get me to buy the ''ancient'' items - but this time around I had a wonderful experience enjoying their spirit.
   
   I don't want to give away too much.
   Read the book. You will not regret it!
   
   Hope it will get you to plan your next holiday to Jordan!



5. I've only heard rave reviews of this book and was strongly encouraged to read it since I would be spending an extended period in Jordan. I think my expectations were too great. I had hoped to learn more about Bedouin traditions and culture and how a Westerner became a part of the society. I'm not a scholar of the Middle East, Arab, or Bedouin historty/tradition, but there was little information that was new for me. I found the book to be poorly organized, lacking of structure, and repetitive. Except for a few "chapters" when the author truly opened up to the reader, I felt as if I were reading a list of items from a day planner. From the anecdotes, it's clear Ms. Van Geldermalsen (Umm Salwa wa Umm Raami) led a rich life and experienced much that most of us will never know. I simply wish she had a better editor.

5 comments about Goodbye, Walter: The Inspiring Story of a Terminal Cancer Patient.

1. As the publisher, it's interesting to see the reaction of different people to Goodbye, Walter. Some seem to get it and are deeply touched by it. There may be others who can't understand why the focus in the book is on RuthAnn, the author.
   We, the publishers, asked RuthAnn to focus on herself--it wasn't her idea, and the original manuscript she submitted didn't do that. The reason is that the beauty of Walter's story is the change he wrought in her. Here is Walter Schifter, who felt so worthless as he was approaching the end of his life that he wanted to commit suicide. However, once he is properly cared for, the richness of his personality and his value as an individual come out. He comes to realize that, even though doctors have told him he has only two weeks to live, every day still matters because he now has a purpose for living. His focus changes from his pain and misery to what he can do for others during those last days.
   RuthAnn, as she comes to know Walter, is profoundly affected by his sense of purpose, and she is touched in such a way that she decides to put her own life back together.
   I love her honesty and her openness. She is struggling with a life that has, in its most important aspects, come unglued, and she freely shares that with us. Walter doesn't preach--he's not that kind of person. But, with his example and his deep desire to be useful to others, he helps her see what is truly important in life. As she builds her life on those important things, it falls into place. And that is the point of this story. It's a profound, beautiful lesson.
   We are seeing tendencies in society to devalue the lives of those with terminal illnesses, people who are totally dependent on others. Some even encourage them to end their lives early. With this book, Walter and RuthAnn show us that life has eminent value, even in its final, potentially miserable days.



2. I am in agreement with Mr. Hall. (The reviewer from Sierra Vista obviously has issues.) The thing that strikes me so much about this book is the sense it gives you of how important life is--not just the importance of being alive, but of living life with a purpose. Death can come to any one of us at any time. Live life earnestly, love earnestly, and rejoice that you have a place in the universe. This point is made with great PERSONAL power.



3. Goodbye, Walter: The Inspiring Story Of A Terminal Cancer Patient by RuthAnn Hogue is an influential biographical depiction of a struggle for life and the many barriers required for survival. Hogue's personal story will enrapture the reader in its telling of a difficult and inconceivably strenuous time for both the author and Walter Shifter, her friend dying of cancer. Goodbye, Walter is very strongly recommended for its inspirational content for readers looking to overcome their own difficult situation, as well as readers who have friends with cancer or other terminal conditions.



4. At first I was a little confused about who this book was about, Walter or RuthAnn. But as I finished the first chapter, I realized that it is about both of them and how Walter's terminal illness enlightened him about his life's purpose and the difference that he made and touched RuthAnn's life in profound ways as well. Isn't that the meaning of enlightenment? I think that it is showing another, by example, something that makes a difference in their own life and transforms them. Through her relationship with Walter, his wife and his friends, RuthAnn began to see life through a different, more empowering avenue and she made more positive choices. I appreciated the opportunity to get close to people that I would not have otherwise gotten to know and realize again, how precious and wonderful it is to be alive....it's not about me....all the time!



5. I have had the fortune to come across this book as my own family had to say farewell and as a mental health professional I've passed this book onto others. A must have for any counselor like myself. A++ Excellent Author & journey

5 comments about Tales from the Bed: A Memoir.

1. First off, I have to admire how Jenifer used her illness and influence to educate others and raise awareness and money for ALS.
   
   That said, I have to agree with the others who said that this book seemed to be heavy on the early-childhood memories and name-dropping than it was about Jenifer's self-awareness and feelings throughout her illness. I would have liked to know how more about how she created and structured Project ALS--it seemed like she just picked up the phone and called a few of her celebrity friends to organize a fundraiser. It might have been more powerful and meaningful if she had gone into more detail about her feelings and thoughts as the disease progressed.
   
   I'm glad I read this book. I certainly do appreciate the courage that Jenifer and her sisters had around ALS, but I agree with the other reviewers who could have done without the list of her many celebrity friends and childhood stories.



2. I've never been moved to write a review before, but this is such a moving memoir. Jennifer's story inspired me in every way. Although I'm completely healthy, I could relate to the book. Life is hard but we all should feel lucky for what we have, for what Jennifer didn't get to have. I want to kiss my kids more than I ever did before, after reading this book. And Jennifer was a great storyteller and writer. I'd recommend this to anyone in need of a good read in front of the fire. That's the kind of book this is. Curl up and enjoy.



3. This was another memoir I wasn't sure I would keep reading. I am glad that I gave this book a chance. It is a very moving, sad book. I think about it fairly often.



4. In 1997, at the age of thirty-five, Jenifer Estess was forced to confront life and a debilitating illness head on. She did so with the help of her two sisters, Valerie and Meredith. Years before the diagnosis, the three sisters had made a pact with each other: "Nothing, no one will stop us." They never lost sight of that pact, nor did they lose sight of the powerful connection they had with one another even in the bleakest of times.
   
   This is a memoir of life--of a life worth celebrating and a life learning the fine points of how to live while dying. Jenifer is diagnosed with A.L.S. (amyotropic lateral sclerosis), better known to many as Lou Gehrig's Disease. She sets the stage from the beginning. We know that there will be no "happily ever after" ending, but there will be a legacy of love and concern for mankind.
   
   With a foreword by Katie Couric, we are introduced to Jenifer and her sisters as well as Project A.L.S.,the company they formed to combat this terrible disease. As Katie so eloquently puts it, "ALS robbed Jenifer of so much. But through it all, she continued to appreciate the beauty of life even when her ability to live it was so creully curtailed. ALS couldn't take away her brilliance, and the one muscle it could not destroy was her heart."
   
   This book is filled to the brim with heart. Jenifer used her heart, even when the rest of her body was failing her, to champion the cause of finding a cure for ALS. Through Project A.L.S., the sisters became political activists for stem cell research, speaking before congress along with Christopher Reeve and other well known people. They enlisted big corporate sponsors to fund research for a cure. And they kept on living despite the obvious progression of a killer disease.
   
   Jenifer is one of those uncommon people who exemplifies grace under pressure. She might have withdrawn from the world, hiding behind her failing body and the cruel fate with which she had been presented. Instead, she reached out to the world, to the healthcare community and to her friends and sisters. She was the strength behind them all, even as she could no longer care for herself or use most of her muscles.
   
   To read this book is to feel as though Jenifer has become your friend as well. In the afterword, written by Valerie Estess, we discover: "For Jenifer, having it all was a simple, exquisite recipe... Combine love, work, compassion, and you will some day, in some way, get to the mountaintop. Making the climb is the ultimate honor and privilege."
   
   Jenifer lost her battle with ALS in 2003. Her legacy lives on in the lessons she taught her sisters, this book which is a true inspiration to all who read it, and through Project A.L.S., which continues to work toward a cure not only for ALS but also for its "sister" diseases--Parkinson's, Alzheimers, and Huntington's.
   
   by Lee Ambrose
   for Story Circle Book Reviews
   reviewing books by, for, and about women



5. I came across this book in a stack of books my mom had and I read it only because my dad died of ALS when 31 years ago (I was 3 at the time.) Jenifer and her sisters tell a very touching story about their life past and present and about the struggles Jenifer had with living with this horrible disease. I found it very interesting and a way I could picture what my family went through with my dad as I was too young to remember. Kudos to Jenifer and her family for their hard work in doing fundraising for Project ALS. It didn't take me long at all to get through the book!